Return of Organization Exempt From Income Tax. Under section 501(c), 527, or 4947(a)(1) of the Internal Revenue Code (except private foundations)

Transcription

1 Return of Organization Exempt From ncome Tax OMB Form Under section 501(c), 57, or 4947(a)(1) of the nternal Revenue Code (except private foundations) 990 À¾µº Do not enter Social Security numers on this form as it may e made pulic. Open to Pulic Department of the Treasury nternal Revenue Service nformation aout Form 990 and its instructions is at nspection A For the 016 calendar year, or tax year eginning, 016, and ending, 0 B J Check if applicale: Address change Name change nitial return C Name of organization Doing Business As Numer and street (or P.O. ox if mail is not delivered to street address) Room/suite D E Employer identification numer Telephone numer Terminated City or town, state or province, country, and ZP or foreign postal code Amended CHCAGO, L G Gross receipts $ 141,70,71. return Application F Name and address of principal officer: LYNN O'CONNOR VOS H(a) s this a group return for Yes pending suordinates? SAME AS C ABOVE H() Are all suordinates included? Yes Tax-exempt status: 501(c)() 501(c) ( ) (insert no.) 4947(a)(1) or 57 f "," attach a list. (see instructions) J Wesite: H(c) Group exemption numer NY Part 1 Briefly descrie the organization's mission or most significant activities: SEE SCHEDULE O K Form of organization: Corporation Trust Association Other L Year of formation: M State of legal domicile: Summary Activities & Governance Revenue Expenses Net Assets or Fund Balances m m m m m m m m m m m m m m m m m m m m m m m Check this ox if the organization discontinued its operations or disposed of more than 5% of its net assets. Numer of voting memers of the governing ody (Part V, line 1a) 4 Numer of independent voting memers of the governing ody (Part V, line 1) 4 5 Total numer of individuals employed in calendar year 016 (Part V, line a) 5 6 Total numer of volunteers (estimate if necessary) m m m m m m m m 6 7a Total unrelated usiness revenue from Part V, column (C), line 1 7a Net unrelated usiness taxale income from Form 990-T, line 4 m m m m m m m m m m m m m m m m m m m m m m m m 7 Prior Year Part Contriutions and grants (Part V, line 1h) COPY FOR Program service revenue (Part V, line g) m m m m m m m m m PUBLC NSPECTON nvestment income (Part V, column (A), lines, 4, and 7d) m m m m m Other revenue (Part V, column (A), lines 5, 6d, 8c, 9c, 10c, and 11e) Total revenue - add lines 8 through 11 (must equal Part V, column (A), m m line m m 1) m Grants and similar amounts paid (Part, column (A), lines 1-) Benefits paid to or for memers (Part, column (A), line 4) m m m m m m m m m m Salaries, other compensation, employee enefits (Part, column (A), lines 5-10) a Professional fundraising fees (Part, column (A), line 11e) m m m m m m m m m m m m m m m m m Total fundraising expenses (Part, column (D), line 5) 18,760,448. Other expenses (Part, column (A), lines 11a-11d, 11f-4e) m m m m m m Total expenses. Add lines 1-17 (must equal Part, column (A), line 5) Revenue less expenses. Sutract line 18 from line 1 m m m m m m m m m m m m m m m m m m m m Total assets (Part, line 16) m Total liailities (Part, line 6) m m m m m m m m m m m m m Net assets or fund alances. Sutract line 1 from line 0 m m m m m m m m m m m m m m m m m m Signature Block Beginning of Current Year Current Year End of Year Under penalties of perjury, declare that have examined this return, including accompanying schedules and statements, and to the est of my knowledge and elief, it is true, correct, and complete. Declaration of preparer (other than officer) is ased on all information of which preparer has any knowledge. 11/08/017 M Signature of officer Date Sign Here M MUSCULAR DYSTROPHY ASSOCATON, NC. Type or print name and title SOUTH RVERSDE PLAZA 1500 (1) JULE FABER Print/Type preparer's name Preparer's signature Date Check if PTN Paid MARC BERGER 11/10/017 self-employed P Preparer Firm's name Use Only BDO USA, LLP Firm's address 8401 GREENSBORO DRVE, #800 MCLEAN, VA May the RS discuss this return with the preparer shown aove? (see instructions) Yes Firm's EN Phone no. m m m m m m m m m m m m m m m m m m m m m m m m m ,0 50,00 69, ,94, ,071,918.,77,0,5,061. 1,66,. 1,6,4. 16,07, ,660,40. 7,847,05. 6,545, ,706,51. 56,846,71. 1,48,181. 1,0,49.,819,49.,86, ,811, ,081,05. 5,6,75,579, ,45,97. 91,9,78. 85,86,09. 84,00,147. 8,419,76. 7,99,591. For Paperwork Reduction Act tice, see the separate instructions. Form 990 (016) CFO 6E PAGE

2 Form 990 (016) Page Part MUSCULAR DYSTROPHY ASSOCATON, NC Statement of Program Service Accomplishments Check if Schedule O contains a response or note to any line in this Part m m m m m m m m m m m m m m m m m m m m m m m m 1 Briefly descrie the organization's mission: MDA S THE NONPROFT HEALTH AGENCY DEDCATED TO CURNG MUSCULAR DYSTROPHY, ALS, AND RELATED DSEASES BY FUNDNG WORLDWDE RESEARCH. THE ASSOCATON ALSO PROVDES COMPREHENSVE HEALTH CARE AND SUPPORT SERVCES, ADVOCACY, AND EDUCATON. m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m f "Yes," descrie these new services on Schedule O. m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m Did the organization undertake any significant program services during the year which were not listed on the prior Form 990 or 990-EZ? Yes Did the organization cease conducting, or make significant changes in how it conducts, any program services? Yes f "Yes," descrie these changes on Schedule O. 4 Descrie the organization's program service accomplishments for each of its three largest program services, as measured y expenses. Section 501(c)() and 501(c)(4) organizations are required to report the amount of grants and allocations to others, the total expenses, and revenue, if any, for each program service reported. 4a (Code: ) (Expenses $ 54,809,5. including grants of $ 1,41,98. ) (Revenue $ ) ATTACHMENT 1 4 (Code: ) (Expenses $ 15,99,994. including grants of $ 1,1,18 ) (Revenue $ ) ATTACHMENT 4c (Code: ) (Expenses $ 15,74,561. including grants of $ ) (Revenue $ ) ATTACHMENT 4d Other program services (Descrie in Schedule O.) (Expenses $ including grants of $ ) (Revenue $ ) 4e Total program service expenses 86,077,088. 6E Form 990 (016) PAGE

3 Form 990 (016) Page Part V Checklist of Required Schedules m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m s the organization required to complete Schedule B, Schedule of Contriutors (see instructions)?m m m m m m m m m m Did the organization engage in direct or indirect political campaign activities on ehalf of or in opposition to candidates for pulic office? f "Yes," complete Schedule C, Part m m m m m m m m m m m m m m m m m m m m m m m m m m m Section 501(c)() organizations. Did the organization engage in loying activities, or have a section 501(h) election in effect during the tax year? f "Yes," complete Schedule C, Part m m m m m m m m m m m m m m m m m m m m m m s the organization descried in section 501(c)() or 4947(a)(1) (other than a private foundation)? f "Yes," complete Schedule A 1 s the organization a section 501(c)(4), 501(c)(5), or 501(c)(6) organization that receives memership dues, assessments, or similar amounts as defined in Revenue Procedure 98-19? f "Yes," complete Schedule C, Part m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m Did the organization maintain any donor advised funds or any similar funds or accounts for which donors have the right to provide advice on the distriution or investment of amounts in such funds or accounts? f "Yes," complete Schedule D, Part m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m Did the organization receive or hold a conservation easement, including easements to preserve open space, the environment, historic land areas, or historic structures? f "Yes," complete Schedule D, Part m m m m m m m m m m Did the organization maintain collections of works of art, historical treasures, or other similar assets? f "Yes," complete Schedule D, Part m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m Did the organization report an amount in Part, line 1, for escrow or custodial account liaility, serve as a custodian for amounts not listed in Part ; or provide credit counseling, det management, credit repair, or det negotiation services? f "Yes," complete Schedule D, Part V m m m m m m m m m m m m m m m m m m m m m m m m m m m Did the organization, directly or through a related organization, hold assets in temporarily restricted endowments, permanent endowments, or quasi-endowments? f "Yes," complete Schedule D, Part Vm m m m m m m m 11 f the organization s answer to any of the following questions is "Yes," then complete Schedule D, Parts V, V, V,, or as applicale. a Did the organization report an amount for land, uildings, and equipment in Part, line 10? f "Yes," c d e f complete Schedule D, Part V m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m Did the organization report an amount for investments-other securities in Part, line 1 that is 5% or more of its total assets reported in Part, line 16? f "Yes," complete Schedule D, Part V m m m m m m m m m m m m m m m m m Did the organization report an amount for investments-program related in Part, line 1 that is 5% or more of its total assets reported in Part, line 16? f "Yes," complete Schedule D, Part V m m m m m m m m m m m m m m m m m Did the organization report an amount for other assets in Part, line 15 that is 5% or more of its total assets reported in Part, line 16? f "Yes," complete Schedule D, Part m m m m m m m m m m m m m m m m m m m m Did the organization report an amount for other liailities in Part, line 5? f "Yes," complete Schedule D, Part m m m m m m m Did the organization s separate or consolidated financial statements for the tax year include a footnote that addresses the organization's liaility for uncertain tax positions under FN 48 (ASC 740)? f "Yes," complete Schedule D, Part m m m m m m 1a Did the organization otain separate, independent audited financial statements for the tax year? f "Yes," complete a MUSCULAR DYSTROPHY ASSOCATON, NC Schedule D, Parts and m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m Was the organization included in consolidated, independent audited financial statements for the tax year? f "Yes," and if the organization answered "" to line 1a, then completing Schedule D, Parts and is optional s the organization a school descried in section 170()(1)(A)(ii)? f "Yes," complete Schedule E Did the organization maintain an office, employees, or agents outside of the United States?m m m m m m m m m m m m m Did the organization have aggregate revenues or expenses of more than $10,000 from grantmaking, fundraising, usiness, investment, and program service activities outside the United States, or aggregate foreign investments valued at $100,000 or more? f "Yes," complete Schedule F, Parts and V m m m m m m m m m m m Did the organization report on Part, column (A), line, more than $5,000 of grants or other assistance to or for any foreign organization? f "Yes," complete Schedule F, Parts and V m m m m m m m m m m m m m m m m m m m m m m Did the organization report on Part, column (A), line, more than $5,000 of aggregate grants or other assistance to or for foreign individuals? f "Yes," complete Schedule F, Parts and V m m m m m m m m m m m m m m m m Did the organization report a total of more than $15,000 of expenses for professional fundraising services on Part, column (A), lines 6 and 11e? f "Yes," complete Schedule G, Part (see instructions) m m m m m m m m m m m m m Did the organization report more than $15,000 total of fundraising event gross income and contriutions on Part V, lines 1c and 8a? f "Yes," complete Schedule G, Part m m m m m m m m m m m m m m m m m m m m m m m m m m m m Did the organization report more than $15,000 of gross income from gaming activities on Part V, line 9a? f "Yes," complete Schedule G, Part m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m a 11 11c 11d 11e 11f 1a a Yes Form 990 (016) 6E PAGE 4

4 Form 990 (016) Page 4 Part V 0 a 1 4 a d 5 a a c a c MUSCULAR DYSTROPHY ASSOCATON, NC Checklist of Required Schedules (continued) Did the organization operate one or more hospital facilities? f "Yes," complete Schedule H m m m m m m m f "Yes" to line 0a, did the organization attach a copy of its audited financial statements to this return? m m m m m m Did the organization report more than $5,000 of grants or other assistance to any domestic organization or domestic government on Part, column (A), line 1? f "Yes," complete Schedule, Parts and m m m m m m m m m m Did the organization report more than $5,000 of grants or other assistance to or for domestic individuals on Part, column (A), line? f "Yes," complete Schedule, Parts and m m m m m m m m m m m m m m m m m m m m m m m m Did the organization answer "Yes" to Part V, Section A, line, 4, or 5 aout compensation of the organization's current and former officers, directors, trustees, key employees, and highest compensated employees? f "Yes," complete Schedule J m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m Did the organization have a tax-exempt ond issue with an outstanding principal amount of more than $100,000 as of the last day of the year, that was issued after Decemer 1, 00? f "Yes," answer lines 4 through 4d and complete Schedule K. f "," go to line 5a m m m m m m m m m m m m m m m m m m m m m m m m m m m m m Did the organization invest any proceeds of tax-exempt onds eyond a temporary period exception?m m m m m m m Did the organization maintain an escrow account other than a refunding escrow at any time during the year to defease any tax-exempt onds? m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m Did the organization act as an "on ehalf of" issuer for onds outstanding at any time during the year? m m m m m m Section 501(c)(), 501(c)(4), and 501(c)(9) organizations. Did the organization engage in an excess enefit transaction with a disqualified person during the year? f "Yes," complete Schedule L, Part m m m m m m m m m m m m s the organization aware that it engaged in an excess enefit transaction with a disqualified person in a prior year, and that the transaction has not een reported on any of the organization's prior Forms 990 or 990-EZ? f "Yes," complete Schedule L, Part m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m Did the organization report any amount on Part, line 5, 6, or for receivales from or payales to any current or former officers, directors, trustees, key employees, highest compensated employees, or disqualified persons? f "Yes," complete Schedule L, Part m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m Did the organization provide a grant or other assistance to an officer, director, trustee, key employee, sustantial contriutor or employee thereof, a grant selection committee memer, or to a 5% controlled entity or family memer of any of these persons? f "Yes," complete Schedule L, Part m m m m m m m m m m m m m m m Was the organization a party to a usiness transaction with one of the following parties (see Schedule L, Part V instructions for applicale filing thresholds, conditions, and exceptions): A current or former officer, director, trustee, or key employee? f "Yes," complete Schedule L, Part V m m m m m m m A family memer of a current or former officer, director, trustee, or key employee? f "Yes," complete Schedule L, Part Vm m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m An entity of which a current or former officer, director, trustee, or key employee (or a family memer thereof) was an officer, director, trustee, or direct or indirect owner? f "Yes," complete Schedule L, Part V m m m m m Did the organization receive more than $5,000 in non-cash contriutions? f "Yes," complete Schedule M m m m m Did the organization receive contriutions of art, historical treasures, or other similar assets, or qualified conservation contriutions? f "Yes," complete Schedule M m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m Did the organization liquidate, terminate, or dissolve and cease operations? f "Yes," complete Schedule N, Part m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m Did the organization sell, exchange, dispose of, or transfer more than 5% of its net assets? f "Yes," complete Schedule N, Part m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m Did the organization own 100% of an entity disregarded as separate from the organization under Regulations sections and ? f "Yes," complete Schedule R, Part m m m m m m m m m m m m m m m m m m m m Was the organization related to any tax-exempt or taxale entity? f "Yes," complete Schedule R, Part,, or V, and Part V, line 1m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m Did the organization have a controlled entity within the meaning of section 51()(1)? m m m m m m m m m m m m m m f "Yes" to line 5a, did the organization receive any payment from or engage in any transaction with a controlled entity within the meaning of section 51()(1)? f "Yes," complete Schedule R, Part V, line m m m m m Section 501(c)() organizations. Did the organization make any transfers to an exempt non-charitale related organization? f "Yes," complete Schedule R, Part V, line m m m m m m m m m m m m m m m m m m m m m m m m m m Did the organization conduct more than 5% of its activities through an entity that is not a related organization and that is treated as a partnership for federal income tax purposes? f "Yes," complete Schedule R, Part V m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m Did the organization complete Schedule O and provide explanations in Schedule O for Part V, lines 11 and 19? te. All Form 990 filers are required to complete Schedule O. 0a 0 1 4a 4 4c 4d 5a a 8 8c a Yes Form 990 (016) 6E PAGE 5

5 Form 990 (016) Page 5 Part V 4a Statements Regarding Other RS Filings and Tax Compliance Check if Schedule O contains a response or note to any line in this Part V m m m m m m m m m m m m m m m m m m m m m Yes 5a Did any taxale party notify the organization that it was or is a party to a prohiited tax shelter transaction? c f "Yes" to line 5a or 5, did the organization file Form 8886-T?m m m m m m m m m m m m m m m m m m m m m m m m m m m m m 6a Does the organization have annual gross receipts that are normally greater than $100,000, and did the 7 a 8 1 a c d e f g h a Gross receipts, included on Form 990, Part V, line 1, for pulic use of clu facilities 11 Section 501(c)(1) organizations. Enter: a Gross income from memers or shareholders m m m m m m m m m m m m m m m m m m m m m m m m m m m Gross income from other sources (Do not net amounts due or paid to other sources a Enter the numer reported in Box of Form Enter -0- if not applicale m Enter the numer of Forms W-G included in line 1a. Enter -0- if not applicale m m m m m m m m m te. f the sum of lines 1a and a is greater than 50, you may e required to e-file (see instructions) Did the organization have unrelated usiness gross income of $1,000 or more during the year? m m f "Yes," has it filed a Form 990-T for this year? f "" to line, provide an explanation in Schedule O m m m m m m m m At any time during the calendar year, did the organization have an interest in, or a signature or other authority over, a financial account in a foreign country (such as a ank account, securities account, or other financial account)? m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m f Yes, enter the name of the foreign country: See instructions for filing requirements for FinCEN Form 114, Report of Foreign Bank and Financial Accounts (FBAR). Was the organization a party to a prohiited tax shelter transaction at any time during the tax year? m m m m m m m m m organization solicit any contriutions that were not tax deductile as charitale contriutions? m m m m m m m m m m m f "Yes," did the organization include with every solicitation an express statement that such contriutions or gifts were not tax deductile?m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m Organizations that may receive deductile contriutions under section 170(c). Did the organization receive a payment in excess of $75 made partly as a contriution and partly for goods and services provided to the payor? m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m f "Yes," did the organization notify the donor of the value of the goods or services provided? m m m m m m m m m m m m Did the organization sell, exchange, or otherwise dispose of tangile personal property for which it was required to file Form 88? m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m f "Yes," indicate the numer of Forms 88 filed during the year m m m m m m m m m m m m m m m m 7d 11 Did the organization receive any funds, directly or indirectly, to pay premiums on a personal enefit contract? Did the organization, during the year, pay premiums, directly or indirectly, on a personal enefit contract? m m m m m f the organization received a contriution of qualified intellectual property, did the organization file Form 8899 as required? f the organization received a contriution of cars, oats, airplanes, or other vehicles, did the organization file a Form 1098-C? Sponsoring organizations maintaining donor advised funds. Did a donor advised fund maintained y the sponsoring organization have excess usiness holdings at any time during the year? m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m 10a m m m m m 10 9 Sponsoring organizations maintaining donor advised funds. a Did the sponsoring organization make any taxale distriutions under section 4966? Did the sponsoring organization make a distriution to a donor, donor advisor, or related person? 10 Section 501(c)(7) organizations. Enter: nitiation fees and capital contriutions included on Part V, line 1 against amounts due or received from them.) m m m m m m m m m m m m m m m m m m m m m m m m m m m 11 Section 4947(a)(1) non-exempt charitale trusts. s the organization filing Form 990 in lieu of Form 1041? f "Yes," enter the amount of tax-exempt interest received or accrued during the yearm m m m m m 1 Section 501(c)(9) qualified nonprofit health insurance issuers. s the organization licensed to issue qualified health plans in more than one state? m m m m m m m m m m m m m m m m m m 1 a te. See the instructions for additional information the organization must report on Schedule O. Enter the amount of reserves the organization is required to maintain y the states in which the organization is licensed to issue qualified health plans 1 c Enter the amount of reserves on hand m m m m m m m m m m m m m m m m m m m m m m m m m m m m m 1c 14 a Did the organization receive any payments for indoor tanning services during the tax year? m m m m m m m f "Yes," has it filed a Form 70 to report these payments? f "," provide an explanation in Schedule O m m m m m m 6E MUSCULAR DYSTROPHY ASSOCATON, NC a 1a c Did the organization comply with ackup withholding rules for reportale payments to vendors and reportale gaming (gamling) winnings to prize winners? m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m a Enter the numer of employees reported on Form W-, Transmittal of Wage and Tax Statements, filed for the calendar year ending with or within the year covered y this return m m a 1,00 f at least one is reported on line a, did the organization file all required federal employment tax returns? 11a 1c a 4a 5a 5 5c 6a 6 7a 7 7c 7e 7f 7g 7h 8 9a 9 1a 1a 14a 14 Form 990 (016) PAGE 6

6 Form 990 (016) Page 6 Part V Governance, Management, and Disclosure For each "Yes" response to lines through 7 elow, and for a "" response to line 8a, 8, or 10 elow, descrie the circumstances, processes, or changes in Schedule O. See instructions. Check if Schedule O contains a response or note to any line in this Part V Section A. Governing Body and Management 1a a Enter the numer of voting memers of the governing ody at the end of the tax year f there are material differences in voting rights among memers of the governing ody, or if the governing m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m any other officer, director, trustee, or key employee?m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m supervision of officers, directors, or trustees, or key employees to a management company or other person? Did the organization make any significant changes to its governing documents since the prior Form 990 was filed? m m Did the organization ecome aware during the year of a significant diversion of the organization's assets? Did the organization have memers or stockholders? m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m one or more memers of the governing ody? m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m stockholders, or persons other than the governing ody? m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m ody delegated road authority to an executive committee or similar committee, explain in Schedule O. Enter the numer of voting memers included in line 1a, aove, who are independent 1 Did any officer, director, trustee, or key employee have a family relationship or a usiness relationship with Did the organization delegate control over management duties customarily performed y or under the direct Did the organization have memers, stockholders, or other persons who had the power to elect or appoint Are any governance decisions of the organization reserved to (or suject to approval y) memers, 8 Did the organization contemporaneously document the meetings held or written actions undertaken during the year y the following: a The governing ody? m m m m m m m m m m m m m m m m m m m m m m m m m m m m Each committee with authority to act on ehalf of the governing ody? m m m m m m m m m m m m m m m m m m m m m m 9 s there any officer, director, trustee, or key employee listed in Part V, Section A, who cannot e reached at the organization's mailing address? f "Yes," provide the names and addresses in Schedule O m m m m m m m m m m m 9 Section B. Policies (This Section B requests information aout policies not required y the nternal Revenue Code.) Yes 10 10a 11a 1a a c a 16a Did the organization have local chapters, ranches, or affiliates? m m m m m m m m m m m m m m m m m m m m m m m m m m f "Yes," did the organization have written policies and procedures governing the activities of such chapters, affiliates, and ranches to ensure their operations are consistent with the organization's exempt purposes? m m m Has the organization provided a complete copy of this Form 990 to all memers of its governing ody efore filing the form? m Descrie in Schedule O the process, if any, used y the organization to review this Form 99 Did the organization have a written conflict of interest policy? f "," go to line 1 m m m m m m m m m m m m m m m m rise to conflicts? m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m descrie in Schedule O how this was done m m m m m m m m Did the organization have a written whistlelower policy? m m m m m m m m m m m m Did the organization have a written document retention and destruction policy? m m m m m m m m m m m m m m m m m m Were officers, directors, or trustees, and key employees required to disclose annually interests that could give Did the organization regularly and consistently monitor and enforce compliance with the policy? f "Yes," Did the process for determining compensation of the following persons include a review and approval y independent persons, comparaility data, and contemporaneous sustantiation of the delieration and decision? The organization's CEO, Executive Director, or top management official m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m Other officers or key employees of the organization f "Yes" to line 15a or 15, descrie the process in Schedule O (see instructions). Did the organization invest in, contriute assets to, or participate in a joint venture or similar arrangement with a taxale entity during the year? m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m f "Yes," did the organization follow a written policy or procedure requiring the organization to evaluate its participation in joint venture arrangements under applicale federal tax law, and take steps to safeguard the organization's exempt status with respect to such arrangements? m m m m m m m m m m m m m m m m m m m m m m m m m List the states with which a copy of this Form 990 is required to e filed ATTACHMENT 4 Section C. Disclosure MUSCULAR DYSTROPHY ASSOCATON, NC Section 6104 requires an organization to make its Forms 10 (or 104 if applicale), 990, and 990-T (Section 501(c)()s only) availale for pulic inspection. ndicate how you made these availale. Check all that apply. Own wesite Another's wesite Upon request Other (explain in Schedule O) Descrie in Schedule O whether (and if so, how) the organization made its governing documents, conflict of interest policy, and financial statements availale to the pulic during the tax year. State the name, address, and telephone numer of the person who possesses the organization's ooks and records: STEPHEN P. EVANS, VP FNANCE SOUTH RVERSDE PLAZA, STE 1500 CHCAGO, Form 990 (016) 6E a a 7 8a a 1a 1 1c a 15 16a 16 Yes PAGE 7

7 MUSCULAR DYSTROPHY ASSOCATON, NC Compensation of Officers, Directors, Trustees, Key Employees, Highest Compensated Employees, and ndependent Contractors Form 990 (016) Page 7 Part V Section A. Check if Schedule O contains a response or note to any line in this Part V m m m m m m m m m m m m m m m m m m m m m m Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees 1a Complete this tale for all persons required to e listed. Report compensation for the calendar year ending with or within the organization's % tax year. List all of the organization's current officers, directors, trustees (whether individuals or organizations), regardless of amount of compensation. Enter -0- in columns (D), (E), and (F) if no compensation was paid. % List all of the organization's current key employees, if any. See instructions for definition of "key employee." List the organization's five current highest compensated employees (other than an officer, director, trustee, or key employee) who received reportale compensation (Box 5 of Form W- and/or Box 7 of Form 1099-MSC) of more than $100,000 from the organization and any related organizations. % List all of the organization's former officers, key employees, and highest compensated employees who received more than $100,000 of reportale compensation from the organization and any related organizations. % List all of the organization's former directors or trustees that received, in the capacity as a former director or trustee of the organization, more than $10,000 of reportale compensation from the organization and any related organizations. List persons in the following order: individual trustees or directors; institutional trustees; officers; key employees; highest compensated employees; and former such persons. Check this ox if neither the organization nor any related organization compensated any current officer, director, or trustee. (C) (A) (B) Position (D) (E) (F) Name and Title Average hours per week (list any hours for related organizations elow dotted line) (do not check more than one ox, unless person is oth an officer and a director/trustee) Reportale compensation from the organization (W-/1099-MSC) Reportale compensation from related organizations (W-/1099-MSC) ndividual trustee or director nstitutional trustee Officer Key employee Highest compensated employee Former Estimated amount of other compensation from the organization and related organizations (1) STANLEY H. APPEL, M.D. DRECTOR 1.00 () C. THOMAS CASKEY, M.D. DRECTOR 1.00 () HAROLD C. CRUMP DRECTOR 1.00 (4) BENJAMN F. CUMBO, DRECTOR 1.00 (5) STEVE FARELLA DRECTOR 1.00 (6) DANEL G. FRES DRECTOR 1.00 (7) GOVERNOR BRAD HENRY DRECTOR 1.00 (8) R. RODNEY HOWELL, M.D., CHARMAN 5.00 (9) DAVE HUTTON DRECTOR 1.00 (10) LOUS M. KUNKEL, PHD DRECTOR 1.00 (11) OLN F. MORRS DRECTOR 1.00 (1) PATRCA NAZEMETZ DRECTOR 1.00 (1) CHRSTOPHER J. ROSA, PHD VCE CHAR.00 (14) MKE ROWLETT 1.00 DRECTOR 6E Form 990 (016) PAGE 8

8 MUSCULAR DYSTROPHY ASSOCATON, NC Form 990 (016) Page 8 Part V Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees (continued) (A) (B) (C) (D) (E) (F) Name and title Average hours per week (list any hours for related organizations elow dotted line) Position (do not check more than one ox, unless person is oth an officer and a director/trustee) ndividual trustee or director nstitutional trustee Officer Key employee Highest compensated employee 1 Su-total m m m m m m m m m m m m m m m m m m m m m m m m m c Total from continuation sheets to Part V, Section A m m m m m m m m m m m m m m m m m m m m m m m m m m m m d Total (add lines 1 and 1c) Former Reportale compensation from the organization (W-/1099-MSC) Reportale compensation from related organizations (W-/1099-MSC) Total numer of individuals (including ut not limited to those listed aove) who received more than $100,000 of reportale compensation from the organization 41 Did the organization list any former officer, director, or trustee, key employee, or highest compensated employee on line 1a? f "Yes," complete Schedule J for such individual m m m m m m m m m m m m m m m m m m m m m m m m m m 4 For any individual listed on line 1a, is the sum of reportale compensation and other compensation from the organization and related organizations greater than $150,000? f Yes, complete Schedule J for such individual m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m 4 5 Did any person listed on line 1a receive or accrue compensation from any unrelated organization or individual for services rendered to the organization? f Yes, complete Schedule J for such person m m m m m m m m m m m m m m m m 5 Section B. ndependent Contractors 1 Complete this tale for your five highest compensated independent contractors that received more than $100,000 of compensation from the organization. Report compensation for the calendar year ending with or within the organization's tax year. Estimated amount of other compensation from the organization and related organizations ( 15) CHARLES D. SCHOOR, ESQ.00 SECRETARY ( 16) MARK SMTH 1.00 DRECTOR ( 17) JOHN TOGNNO 1.00 DRECTOR ( 18) KRSTNE WELKER 1.00 DRECTOR ( 19) VCTOR WRGHT.00 TREASURER ( 0) LLAN WU, PHD 1.00 DRECTOR ( 1) STEVEN M. DERKS 500 PRESDENT & CEO 475, ,94. ( ) JULE FABER, CPA 500 ASST. TREASURER & CFO 9,64. 6,461. ( ) VALERE A. CWK, MD 500 ASST. SEC.CHEF MED SCENTFC 40,00. 6,461. ( 4) ROBERT M. GRNSFELDER 500 EVP - CHEF FELDS OPS OFFCER 1, ,066. ( 5) STEVEN G. FORD 500 EVP-CHEF COMM/MRKT OFFCER 09, ,009.,8,45. 04,708.,8,45. 04,708. Yes ATTACHMENT 5 (A) Name and usiness address (B) Description of services (C) Compensation Total numer of independent contractors (including ut not limited to those listed aove) who received more than $100,000 in compensation from the organization 60 6E Form 990 (016) PAGE 9

9 MUSCULAR DYSTROPHY ASSOCATON, NC Form 990 (016) Page 8 Part V Section A. Officers, Directors, Trustees, Key Employees, and Highest Compensated Employees (continued) (A) (B) (C) (D) (E) (F) Name and title Average hours per week (list any hours for related organizations elow dotted line) Position (do not check more than one ox, unless person is oth an officer and a director/trustee) ndividual trustee or director nstitutional trustee Officer Key employee Highest compensated employee Former Reportale compensation from the organization (W-/1099-MSC) Reportale compensation from related organizations (W-/1099-MSC) Estimated amount of other compensation from the organization and related organizations ( 6) ELEEN M. TMMNS, PHD 500 EVP - CHEF PEOPLE OFFCER 186,859. 9,668. ( 7) ANN MCNAMARA 500 EVP - CHEF DEV. OFFCER 17,86. 6 ( 8) JOHN WALSH 500 DVSON CHEF EECUTVE 17,98. 16,009. ( 9) JEANNNE M. HOULHAN 500 CHEF NFORMATON OFFCER 0,651.,7. ( 0) GRACE K. PAVLATH, PHD 500 SR. VP. - SCENTFC PROG DR 189,95. 10,066. ( 1) GAL SCHMERTZ KERNER, ESQ 500 CHEF LEGAL OFFCER 188, ,078. ( ) NANCY STNSON HARRS 500 NVP OF CORP PARTNERSHP 187,67. 7,495. ( ) MARGARET HODGES 500 DVSON CHEF EECUTVE 144,48. 16, Su-total m m m m m m m m m m m m m m m m m m m m m m m m m c Total from continuation sheets to Part V, Section A m m m m m m m m m m m m m m m m m m m m m m m m m m m m d Total (add lines 1 and 1c) Total numer of individuals (including ut not limited to those listed aove) who received more than $100,000 of reportale compensation from the organization 41 Did the organization list any former officer, director, or trustee, key employee, or highest compensated employee on line 1a? f "Yes," complete Schedule J for such individual m m m m m m m m m m m m m m m m m m m m m m m m m m 4 For any individual listed on line 1a, is the sum of reportale compensation and other compensation from the organization and related organizations greater than $150,000? f Yes, complete Schedule J for such individual m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m 4 5 Did any person listed on line 1a receive or accrue compensation from any unrelated organization or individual for services rendered to the organization? f Yes, complete Schedule J for such person m m m m m m m m m m m m m m m m 5 Section B. ndependent Contractors 1 Complete this tale for your five highest compensated independent contractors that received more than $100,000 of compensation from the organization. Report compensation for the calendar year ending with or within the organization's tax year. Yes (A) Name and usiness address (B) Description of services (C) Compensation Total numer of independent contractors (including ut not limited to those listed aove) who received more than $100,000 in compensation from the organization 6E Form 990 (016) PAGE 10

10 MUSCULAR DYSTROPHY ASSOCATON, NC Statement of Revenue Form 990 (016) Page 9 Part V Contriutions, Gifts, Grants and Other Similar Amounts Program Service Revenue Other Revenue 1a Check if Schedule O contains a response or note to any line in this Part V m m m m m m m m m m m m m m m m m m m m m m m m Federated campaigns Memership dues m m m m m m m m m m c Fundraising events d Related organizations e Government grants (contriutions) m m f All other contriutions, gifts, grants, and similar amounts not included aove m 1f g ncash contriutions included in lines 1a-1f: $ h Total. Add lines 1a-1f m m m m m m m m m m m m m m m m m m a c d 6a 1a 1 1c 1d 1e Business Code e f All other program service revenue g Total. Add lines a-f m m m m m m m m m m m m m m m m m m and other similar amounts) m m m m m m m m m m m m m m m ncome from investment of tax-exempt ond proceeds Royalties m m m m m m m m m m m m m m m m m m m m m m m m (i) Real (ii) Personal Gross rents m m m m m Less: rental expenses m c Rental income or (loss) m d Net rental income or (loss) m m m m m m m m m m m m m m m m nvestment income (including dividends, interest, 4 5 7a Gross amount from sales of assets other than inventory m m m m (i) Securities (ii) Other Less: cost or other asis and sales expenses 11,885,855. 1,499. c Gain or (loss) m m 65,61. -1,86. d Net gain or (loss) m m m m m m m m m m m m m m m m m m m m 8a of contriutions reported on line 1c). See Part V, line 18 m a Less: direct expenses m m m m m m m m m m c Net income or (loss) from fundraising events m m m m m m m Gross income from gaming activities. See Part V, line 19 m a Less: direct expenses m m m m m m m m m m c Net income or (loss) from gaming activities m m m m m m m Gross sales of inventory, less returns and allowances a Less: cost of goods sold m m m m m m m m m c Net income or (loss) from sales of inventorym m m m m m m m 9a 10a 11a c Gross income from fundraising events (not including $ 95,818,189. Miscellaneous Revenue 41,76. 95,818, ,8. 0,85, ,15. 1,58, ,970,79. 8,970,79. 79,9. 11,776. Business Code m m m m m m m m m m m m m m m m m m m m d All other revenue e Total. Add lines 11a-11d 1 Total revenue. See instructions. m m m m m m m m m m m m m 6E (A) Total revenue 117,071,918. (B) Related or exempt function revenue (C) Unrelated usiness revenue (D) Revenue excluded from tax under sections ,67,84. 1,67,84. 6,9. 6,9. 651,7. 651,7. 518, ,156. QUEST ADVERTSNG , ,757. OTHER REVENUE ,578. 1, ,5. 10,660,40. 69,757.,18,77. Form 990 (016) PAGE 11

11 MUSCULAR DYSTROPHY ASSOCATON, NC Part Statement of Functional Expenses Section 501(c)() and 501(c)(4) organizations must complete all columns. All other organizations must complete column (A). Form 990 (016) Page 10 Check if Schedule O contains a response or note to any line in this Part m m m m m m m m m m m m m m m m m m m m m m m m Do not include amounts reported on lines 6, 7, 8, 9, and 10 of Part V. 1 Grants and other assistance to domestic organizations and domestic governments. See Part V, line 1 m m m m Grants and other assistance to domestic individuals. See Part V, line m m m m m m m m m Grants and other assistance to foreign organizations, foreign governments, and foreign individuals. See Part V, lines 15 and 16 m m m m m 4 Benefits paid to or for memers m m m m m m m m m 5 Compensation of current officers, directors, trustees, and key employees m m m m m m m m m m 6 Compensation not included aove, to disqualified persons (as defined under section 4958(f)(1)) and persons descried in section 4958(c)()(B) m m m m m m 7 Other salaries and wages m m m m m m m m m m m m 8 Pension plan accruals and contriutions (include 9 section 401(k) and 40() employer contriutions) Other employee enefits Payroll taxes m m m m m m m m m m m m m m m m m m Fees for services (non-employees): a Management Legal c Accounting d Loying e Professional fundraising services. See Part V, line 17 m f g a c d m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m nvestment management fees m m m m m m m m m Other. (f line 11g amount exceeds 10% of line 5, column (A) amount, list line 11g expenses on Schedule O.) Advertising and promotion m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m Office expenses nformation technology Royalties Occupancy Travel Payments of travel or entertainment expenses for any federal, state, or local pulic officials Conferences, conventions, and meetings nterest Payments to affiliates Depreciation, depletion, and amortization nsurance m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m Other expenses. temize expenses not covered aove (List miscellaneous expenses in line 4e. f line 4e amount exceeds 10% of line 5, column (A) amount, list line 4e expenses on Schedule O.) e All other expenses 5 Total functional expenses. Add lines 1 through 4e 6 Joint costs. Complete this line only if the organization reported in column (B) joint costs from a comined educational campaign and fundraising solicitation. Check here if following SOP 98- (ASC ) m m m m m m m (A) (B) (C) (D) Total expenses Program service Management and Fundraising expenses general expenses expenses 4,86,77. 4,86,77. Form 990 (016) 6E ,159,01.,159,01. 1,995, , , ,81. 4,00,566.,118,816. 4,6,14. 4,58,66. 9,16,5. 7,796,777. 1,109, ,644.,514,595.,789, ,96. 64, ,77. 4,919. 8,906. 7,90. 4,40. 4,40. 1,0,49. 1,0,49. 1,491. 1, ,066,556.,686, ,614. 6,88,898. 9,005,69.,18,6.,119,176.,70, ,00. 64,00. 6,66,086. 5,570, ,18 479,07,1,9.,505,57. 6,1. 91,66 644,66 50,07 55, ,41. 10, , ,51. 8,5. 104, ,4. MSC EPENSES,10,614. 1,76. 1,501, ,7. 118,081,05. 86,077,088. 1,4, ,760,448.,48,08. 7,45. 94,748. 1,91,089. PAGE 1

12 Form 990 (016) Page 11 Part Assets Liailities Net Assets or Fund Balances a MUSCULAR DYSTROPHY ASSOCATON, NC Balance Sheet Check if Schedule O contains a response or note to any line in this Part m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m Cash - non-interest-earing Savings and temporary cash investments Pledges and grants receivale, net Accounts receivale, net m m m m m m m m m m m m m m m m m m m m m m m m m m m m Loans and other receivales from current and former officers, directors, trustees, key employees, and highest compensated employees. Complete Part of Schedule L m m m m m m m m m m m m m m m m m m m m m m m m m Loans and other receivales from other disqualified persons (as defined under section 4958(f)(1)), persons descried in section 4958(c)()(B), and contriuting employers and sponsoring organizations of section 501(c)(9) voluntary employees' eneficiary organizations (see instructions). Complete Part of Schedule L tes and loans receivale, net nventories for sale or use m m m m m m m m m m m m m m m m m m m m m m m m m m m m Prepaid expenses and deferred charges Land, uildings, and equipment: cost or other asis. Complete Part V of Schedule D 10a Less: accumulated depreciation 10 nvestments - pulicly traded securities nvestments - other securities. See Part V, line 11 nvestments - program-related. See Part V, line 11 ntangile assets Other assets. See Part V, line 11 Total assets. Add lines 1 through 15 (must equal line 4) Accounts payale and accrued expenses Grants payale Deferred revenue Tax-exempt ond liailities m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m Escrow or custodial account liaility. Complete Part V of Schedule D m m m m Loans and other payales to current and former officers, directors, trustees, key employees, highest compensated employees, and disqualified persons. Complete Part of Schedule L m m m m m m m Secured mortgages and notes payale to unrelated third parties Unsecured notes and loans payale to unrelated third parties m m m m m m m m m Other liailities (including federal income tax, payales to related third parties, and other liailities not included on lines 17-4). Complete Part of Schedule D m m m m m m m m m m m m m m Total liailities. Add lines 17 through 5 m m m m m m m m m m m m m m m m m m m m Organizations that follow SFAS 117 (ASC 958), check here and complete lines 7 through 9, and lines and 4. Unrestricted net assets m m m m m Temporarily restricted net assets Permanently restricted net assets m m m m m m m m m m m m m m m m m m m m m m m m Organizations that do not follow SFAS 117 (ASC 958), check here and complete lines 0 through 4. Capital stock or trust principal, or current funds m m m m m m m m Paid-in or capital surplus, or land, uilding, or equipment fund m m m m Retained earnings, endowment, accumulated income, or other funds Total net assets or fund alances m m m m m m Total liailities and net assets/fund alances m m m m m m m m m m m m m m m m m m (A) Beginning of year (B) End of year,56,965.,09, ,07,10.,71,0. 5,560, ,97,974. 6,704,7 6,065,1 869, c 69,06 64,,6 94,45,97. 5,0,88. 11,486, ,57, ,9,78. 6,16,14. 9,061, ,500,00 1,500, ,55, ,79, ,86, ,00,147.,908,059. 7,4,467. 4,07,996. 8,90,49. 48, ,695. 8,419,76. 94,45, ,99, ,9,78. Form 990 (016) 6E PAGE 1

13 Form 990 (016) Page 1 Part Reconciliation of Net Assets Check if Schedule O contains a response or note to any line in this Part m m m m m m m m m m m m m m Total revenue (must equal Part V, column (A), line 1) 1 Total expenses (must equal Part, column (A), line 5) Revenue less expenses. Sutract line from line 1 m m m m m m m m m m m m m m m m m m m m m Net assets or fund alances at eginning of year (must equal Part, line, column (A)) 4 Net unrealized gains (losses) on investments 5 Donated services and use of facilities 6 nvestment expenses m m 7 Prior period adjustments m m m m m m m m m m m m m m m m m m m m m m m m 8 Other changes in net assets or fund alances (explain in Schedule O) m m m m m m m m m m m m m m m m 9, column (B)) m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m 10 Financial Statements and Reporting Check if Schedule O contains a response or note to any line in this Part m m m m m m m m m m m m m m m m m m m 10 Net assets or fund alances at end of year. Comine lines through 9 (must equal Part, line Part MUSCULAR DYSTROPHY ASSOCATON, NC Accounting method used to prepare the Form 990: Cash Accrual Other f the organization changed its method of accounting from a prior year or checked "Other," explain in Schedule O. a Were the organization's financial statements compiled or reviewed y an independent accountant?m m m m m m m f "Yes," check a ox elow to indicate whether the financial statements for the year were compiled or reviewed on a separate asis, consolidated asis, or oth: Separate asis Consolidated asis Both consolidated and separate asis Were the organization's financial statements audited y an independent accountant? m m m m m m m m m m m m m m f "Yes," check a ox elow to indicate whether the financial statements for the year were audited on a separate asis, consolidated asis, or oth: Separate asis Consolidated asis Both consolidated and separate asis c f "Yes" to line a or, does the organization have a committee that assumes responsiility for oversight of the audit, review, or compilation of its financial statements and selection of an independent accountant? f the organization changed either its oversight process or selection process during the tax year, explain in Schedule O. a As a result of a federal award, was the organization required to undergo an audit or audits as set forth in the Single Audit Act and OMB Circular A-1? m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m m f "Yes," did the organization undergo the required audit or audits? f the organization did not undergo the required audit or audits, explain why in Schedule O and descrie any steps taken to undergo such audits. 10,660, ,081,05.,579,097. 8,419,76.,9, ,98,775. 7,99,591. a c a Yes Form 990 (016) 6E PAGE 14