Increasing physical activity in stroke survivors using STARFISH, an interactive mobile phone application

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Increasing physical activity in stroke survivors using STARFISH, an interactive mobile phone application Dr Lorna Paul, Prof S Wyke, Prof S Brewster, Dr Aleksandra Dybus, Danny Rafferty, Dr Jason Gill, Gill Alexander, Dr Cindy Gray

STARFISH STARFISH is a smart phone app designed as a behavioural change intervention to encourage physical activity The sensors within a standard smart phone record the number of steps taken per day by the individual Each person is represented by a fish within a fish tank. When the participant is active their fish blows bubbles and swims faster As the participant reaches their target number of steps per day, their fish s fins and tail grow.

Key features - Social facilitation and targets STARFISH is undertaken in groups of four Each fish is distinguishable by colour thus each participant gets feedback on the activity of each member of the group

Key features Physical activity targets are individual Each person can access their daily or weekly step counts

Physical activity targets - Individual Each week the fish fins grow if the person achieves their daily target Physical activity targets are individual Individualised feedback for motivation If individual reaches their step count target it is increased by 5% for the following week

Physical activity targets - Group Each week a new creature comes to swim in the tank if the group achieve their target on 5 of 7 days in the week (seahorse, octopus, final creature is a Starfish) Group reward for motivation

Phase 1(co-design) 4 stroke survivors were recruited from Stobhill Hospital, Glasgow They took part in co-design sessions, where they had the opportunity to express their views on the STARFISH application The accelerometer within the mobile phones was also calibrated for stroke gait The existing STARFISH application was adapted by screen scheme colour changed, text and tick boxes enlarged, progress bars added sensitivity of the touch screen reduced

Phase 2 (intervention) 24 stroke survivors (13 females and 11 males; mean age 55.2 (SD 9.7) time since stroke: 4.2 ± 4.0 years) were recruited from stroke support groups in Glasgow, Scotland and allocated to intervention (n=16) or control group (n=8) Inclusion criteria: single unilateral stroke discharged from rehabilitation the ability to walk independently, with or without using an aid or orthosis the ability to comprehend instruction Exclusion Criteria: a history of serious cardiac disease uncontrolled blood pressure significant neurological or musculoskeletal conditions in addition to stroke

Phase 2 (intervention) Outcome measures taken before and after the intervention: - Physical activity levels over 7 days (ActivPAL) - Fatigue Severity Scale (FSS), - Instrumental Activities of Daily Living Scale (IADL), - Stroke Specific Quality of Life Scale (SS-QOL), - Psychological General Well-Being Index (PGWBI) - The Ten-Meter Walking Test (10 MWT)

Phase 2 (intervention) the intervention group followed the STARFISH programme for six weeks week 1 target - the mean number of steps per day recorded on the phone during the baseline period plus 10% daily step targets reviewed each week and increased by 5% for the following week if users had achieved their step count target on 5 of 7 days, if they had not achieved their target the previous week it was unchanged at week 3 participants attended the CRF for informal discussion and review of targets

Phase 2 (Control) Control participants usual care for six weeks completed the same outcome measures as the intervention group following the control period they were given the opportunity to follow the STARFISH programme for six weeks

Results Intervention Group (n=15) Control group (n=8) Baseline Week 6 Baseline Week 6 Step count 3993 (2384) 5774 (2926) Sedentary time (hrs) 19.48 (1.81) 10MWT (m/s) 0.36 (0.19) 18.54 (2.16) 0.42 (0.18) SSQoL 171.3 (36.3) 185.4 (35.4) IADL 5.3 (1.9) PGWBI 76.7 (17.7) FSS 3.6 (1.4) 5.3 (1.4) 79.8 (15.0) 3.1 (1.4) 3640 (3498) 2936 (2409) 19.94 (1.78) 0.37 (0.26) 19.36 (2.76) 0.41 (0.19) 169.0 (50.1) 176.8 (55.5) 4.8 (2.3) 79.4 (14.8) 4.1 (1.4) 5.5 (1.6) 82.6 (19.8) 5.2 (1.6) Group/ Time Interaction 0.005* 0.705 0.967 0.313 0.090 0.961 0.003* 10MWT= Ten Meter Walking Test, SSQoL=Stroke Specific Quality of Life scale, IADL,=Instrumental Activities of Daily Living Scale, PGWBI= Psychological General Well-being Index, FSS= Fatigue Severity Scale.

Examples of quotes from focus groups It gave you something to look forward to We live in sheltered accommodation... They were like Hi [name] have a seat and I was sorry I have to do my steps I was looking at the tails to see if I can have the biggest one Have done a lot more walking than I have done before Its surprising how many steps you are actually doing in the house You can sit all day watching TV but now we re in a team so there s motivation..my hips don t get sore when I m walking now... I ve lost a bit of weight as well

What s next? STARFISH in Stroke RCT STARFISH appeared to be a fun way to improve physical activity and health outcomes in people after stroke Grant secured from Chest, Heart and Stroke Scotland for fully powered randomised controlled trial 58 people in each arm of the study: intervention vs control 4 month intervention with 2 months follow up Anyone interested in being involved contact Lorna.Paul@glasgow.ac.uk 0141 330 6876