Annual Report of the WHO Collaborating Centre for the Family of International Classifications in Germany

Transcription

1 Annual Report of the WHO Collaborating Centre for the Family of International Classifications in Germany Stefanie Weber, Ulrich Vogel The WHO Collaborating Centre for the Family of International Classifications for the German Language was designated in June 2003, redesignated in May 2008 and is part of the German Institute for Medical Documentation and Information (DIMDI) in Cologne. The Centre is headed by Dr. Stefanie Weber, deputy head is Ulrich Vogel. The ICF Research Branch (Director: Prof. Gerold Stucki) acts as the research body of the Collaborating Centre. Activities in WHO-FIC Annual Meeting 2010 The Centre's Head, two colleagues from DIMDI and several members of the ICF Research Branch took part in the WHO-FIC Annual Meeting 2010 in Toronto, Canada. Two experts on Procedure Classifications and Terminologies from the University of Freiburg where asked to attend the meeting on behalf of the German Centre to enrich discussions through their expertise. ICD-10 Together with the Federal Statistical Office, a two-day training courses for mortality coders was given focusing on the updates to ICD-10 version 2011 and its coding rules and on the discussion of difficult certificates from every-day work. Additionally an expert on Cardiovascular diseases gave an introduction to the medical part of the respective ICD-10 sections. As well the updates to the automated coding system Iris were introduced and explained to the coders with the possibility for some hands-on training. The WHO Classifications team was supported by DIMDI in the generation of the ICD-10 Version 2010 files for publication. With assistance of DIMDI, WHO is now able to generate Volume I of ICD-10 in an annual Cycle. Volume III of Version 2010 is still maintained in DIMDI for the English and French version. Dr. Stefanie Weber attended project meetings of the IRIS Core Group. DIMDI agreed to be a co-partner of an international project of the IRIS-group to enhance the software for language independency and implementation of updates. In that respect a scientist was engaged to review the underlying cause decision tables and the algorithms of the multiple cause coding for Automatically assigning an underlying cause. The German Centre supports the URC secretariat in finalizing the WHO update document for the updates approved at the Toronto meeting. Furthermore the German Centre supports the URC in removing ambiguity of the update coming up while implementing it into the different national coding schemes (modifications). For implementation in ICD-10-GM, preparation (localization) of the update (tabular and index) has been continued in due consideration of the special needs of the German DRG system. Further discussions and activities with members of the respective medical boards (e.g.

2 medical and epidemiological cancer registers) were conducted to refine the references to morphology codes. In the ICD-10-GM official WHO updates have been implemented and published for the Version For the ICD-10 WHO-Version in German the updates were published in the end of 2010 and became valid for all Cancer registers and for Mortality Coding. All three volumes have been published for printing, electronic use and online browsing.. ICD-11 Dr. Weber is a member of the Topic Advisory Group (TAG) on Health Information Modeling (TAG HIM). She participated in various phone conferences and -discussions on the content model of the ICD-11. Prof. Stucki is the co-chair of the functioning TAG and is a member of the TAG on musculoskeletal disorders. Ulrich Vogel is a member of the Morbidity TAG and the TAG Neoplasm. He participated in various phone conferences and discussions on morbidity issues. Both Dr. Weber and Prof. Stucki participated in the Midyear meeting for the alpha draft release in Geneva inapril 2011.To kick-off the work of integrating ICF language in the ICD-11 and promoting the joint use of ICD and ICF, the first ftag meeting was held at the WHO-FIC annual meeting 2010 in Toronto. At the Toronto meeting, the ftag deliberated over a draft of H53 and H54 codes provided by the ophthalmology TAG and produced a revised version of a response paper that offered some recommendations for further optimizing the H53 and H54 codes in light of related functioning properties. Since this meeting, members of the ICF Research Branch along with the ftag co-chair, Dr. Cille Kennedy have finalized a guidelines document for populating the functioning properties (FP) in the icat to be pilot-tested by the ftag before finalizing for distribution to the vertical TAGs. In addition, members of the ICF Research Branch have populated several health conditions as examples for the vertical TAGs on how populating FP works. ICD-10-GM 2011 Version 2011 of the ICD-10 German Modification was implemented in January Version 2012 was released in preliminary format in July The final Version 2012 was released by the end of September 2011 and will be implemented in January Crosswalks from ICD-10-GM 2011 to ICD-10-GM 2012 are published together with the classification itself. ICD-10 Thesaurus The ICD-10 Thesaurus of Diagnostic Terms was updated and was released in early October 2011 as the official Alphabetical Index to ICD-10-GM. ICF Details of the activities at the ICF Research Branch are available as appendix to this report. DIMDI started national consultations on the planned updates for ICF. A working group convened in DIMDI in late November 2011 to discuss the German position on the updates for ICF. The meeting showed that there is great interest in the updates of ICF in the expert group and DIMDI will continue to discuss the ICF updates on a national level and feed back the results into the international update process. Dr. Ulrike Trinks participated in the midyear meeting of the FDRG in Sydney. She reported

3 on the German activities and promoted a clear and streamlined update process according to the ICD-10 update process which is well established. ICF-CY The German translation of the ICF for Children and Youth (ICF-CY) was published in print in early fall. The pilot study validating the ICF-based evaluation tool developed for implementation in the Swiss education system (creating and using a functional description for a child as a basis for negotiating the educational plan and thus eligibility for special needs services) is complete and in the implementation phase in most cantons of Switzerland. Due to its possible relevance for Germany, this tool will a topic for discussion at the national ICF working group meeting planned for November 2011 ICF Research Branch steering committee member, Prof. Judith Hollenweger presented this topic at the ICF Symposium that was coupled with the FDRG and FDC mid-year meetings held at the University of Sydney at the end of June ICD-O-3 The first version of the German translation was released in August 2003 and is available in a paper version. Conversion tables and a second edition with extensive annotations to the morphology terms are still pending as resources for such work are limited due to intensive work on ICD-10-GM and OPS, which are the essential classifications for the German DRG system. All files are in the public domain and accessible on the DIMDI web server. OPS (German Procedure Classification) Version 2012 of the German procedure classification was released as a draft in August The final versions of Tabular List and Alphabetical Index will be published in late October 2011 and are to be implemented in January They will be available in various file formats on the DIMDI web server. Crosswalks from OPS 2011 to OPS 2012 are published together with the classification itself. ICHI and CCAM DIMDI participated in the meetings of the FDC to discuss the ICHI developments. As well the University of Freiburg took up some testing for the basic ICHI to see if its structure is fit for the needed content and the classification then would be fit for the user needs. Intensive work on the ICHI by the FDC in a spring meeting was supported by the University of Freiburg and follow up work is still ongoing. Due to the contribution of experts at the spring meeting a version of the ICHI with solid contend will be presented at the Cape town meeting. MeSH Version 2011 of the German language edition of the Medical Subject Headings (MeSH) will be published in Informatics and Terminology Committee The Centre Head co-chairs the Informatics and Terminology Committee of the WHO-FIC Network. Work in 2010/2011 focused on the consolidation of the newly merged Committee.

4 Support to WHO in the publication of the ICD-11-Alpha draft was another key area of work. Other Activities Dr. Weber is Co-Chair of the WHO-FIC Council. She attended the WHO-FIC Council meeting in April in Geneva. On a regular basis she attended phone calls of the Small Executive Group of the Council, phone conferences on the Meeting Planning Group for the meeting incape town and organized together with the other co-chair the Council phone conferences and Mid Year Meeting. As well, due to the Council chair position, Dr. Weber is a member of the Revision Steering Group (RSG) for the Revision process and attended meetings via phone or in person of the RSG. Dr. med. Stefanie Weber Head Ulrich Vogel Deputy Head WHO Collaborating Centre for the Family of International Classifications German Institute of Medical Documentation and Information (DIMDI) Waisenhausgasse a D K ö l n Telephone: Telefax: stefanie.weber@dimdi.de www: Appendix: Activities of the ICF Research Branch in 2010 and 2011 Jerome Bickenbach, Alarcos Cieza, Judith Hollenweger, Melissa Selb, Gerold Stucki The ICF Research Branch and DIMDI held the first of bi-annual meetings on 1 June 2011 in Cologne. The work plan was updated and possible future projects were discussed. Functioning and Disability Reference Group (FDRG) Prof. Stucki, co-chair of the FDRG, and Melissa Selb, ICF Research Branch Coordinator, participated in regular phone conferences throughout the year. Based on their respective expertise in the ICF, measurement and children/youth, the ICF Research Branch steering group members, Dr. Alarcos Cieza, Prof. Jerome Bickenbach and Prof. Judith Hollenweger has provided valuable input toward achieving the FDRG work plan tasks of updating the ICF

5 and coming to a final draft of the ICF coding guidelines. Melissa Selb supported the ICF update task leaders during 2011 initial review stage as well as in preparing the ICF update proposals for discussion at the 2011 FDRG mid-year meeting. Prof. Stucki joined his FDRG co-chair in running the June 2011 FDRG mid-year meeting hosted by the University of Sydney and that was attended by 36 participants. ICF elearning Tool In her capacity as a member of the WHO-FIC Education and Implementation Committee and the FDRG, Dr. Cieza has been instrumental in putting the introductory module of the electronic ICF learning tool online and in finalizing the German version of the tool. The possibility of putting the German version of the elearning tool on the DIMDI website is in discussion between WHO and DIMDI. The ICF Research Branch will provide an advisory role if requested. ICF training sessions To teach health professionals and researchers how the ICF can be used in research and in clinical practice, members of the ICF Research Branch have conducted various training workshops worldwide. A 2-day ICF train-the-trainer workshop has been held in Nottwil, Switzerland in February and October 2011 and will continue to be offered bi-annually. Methods development The Generic ICF Set (now called Minimal Generic Set) has undergone additional analyses and has produced a set of categories that are considered highly relevant for application in clinical practice. The Minimal Generic Set, including those relevant for clinical practice, was the basis for discussions among representatives of the PROMIS-project, the ICF Research Branch and WHO in finding the links between PROMIS items and the ICF. Development and evaluation of an ICF-based patient education program for stroke patients The ICF-based patient education program for stroke patients is in its final stage of completion. After publishing the final version of the program (Neubert S, Sabariego C, Stier- Jarmer M and Cieza A. Development of an ICF-based patient education program. Patient Educ Couns. 2011; 84(2): e13-17), its effectiveness was evaluated in a prospective, singleblinded, randomised multicentre trial. The data is currently being analyzed and the results will be submitted for publication by the end of Use of the ICF Core Sets for head and neck cancer (HNC) as a reference for developing guidelines in aftercare This project aims to develop practical guidelines for identifying appropriate measurement instruments that assess the goals of interdisciplinary aftercare of HNC patients using the ICF Core Sets for HNC as a reference. The preliminary studies have been completed and a consensus conference is planned for October 2011, during which an interdisciplinary group of HNC experts will finalize and approve the guidelines for implementation in at least 3 clinics in Germany. This project was funded by the Deutsche Krebshilfe e.v. and Research.

6 Manual for use of ICF Core Sets in Practice In the 2nd half of 2012, the ICF Research Branch will publish a manual (in English, German and Italian) on using the ICF Core Sets in clinical practice. This document is not issued to the general public, and all rights are reserved by the World Health Organization (WHO). The document may not be reviewed, abstracted, quoted, reproduced or translated, in part or in whole, without the prior written permission of WHO. No part of this document may be stored in a retrieval system or transmitted in any form or by any means - electronic, mechanical or other - without the prior written permission of WHO. The views expressed in documents by named authors are solely the responsibility of those authors.