Agenda 45 min. Tips to Prevent Form 2802, Lost to Follow-up Casey Beardslee, Supervisor Donor Contact Team Minneapolis, MN Introduction Tricks/hints for locating patient contact information Outreach options Search engines Social Media Questions The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 2 Why Me? ARS Questions The team I work on focuses on difficult to find donors CallBack Unit Escalation team of 13 people housed in MN We work on approximately 20% of domestic donor formal searches We use available clues to piece together the big picture Automated Response System Interactive Presentation ARS question will be kept open until most of you responded If you select an option, you can change your mind and just press the correct number Your last response will be the one recorded. The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 3 The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 4 ARS Question Where are you from? 1. Utah 2. Wisconsin 3. Another US State 4. Non-Us (International) Location Utah 25% 25% 25% 25% Wisconsin US State International ARS Question In my down time in Salt Lake City, I plan to 1. Stay in my room and order room service 2. Everything and anything 3. I m not sure yet Room 33% 33% 33% Everything Not Sure The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 5 The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 6 1
Form 2802 Outreach Options The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 7 The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 8 Types of Outreach Traditional Phone Calls Home Work Cell Letter Emails Types of Outreach Other Outreach Phone calls (lots and lots) Text messages FedEx Letters Outreach to contacts Outreach to possible contacts Use and search with social media and free search engines The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 9 The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 10 Text Messages 160 characters available Short messages, have been found to be most effective Example, Hello, is this Kay? Note: check with your legal regarding guidelines Outreach Attempt outreach for several days Stagger outreach across evenings and weekends Be available on those off hours The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 11 The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 12 2
ARS Question Search Engines At my location, we search for patients on the internet (example Google) 1. Never 2. Every once in a while 3. All of the time Never 33% 33% 33% Once in While All the Time The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 13 The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 14 Overview Uses an algorithm to determine what results to show you. Results are ordered based on relevancy, or what makes sense according to their algorithm. You can force Google to show you certain results, which will help you more effectively find what you re looking for. Google should be your go-to site Refining your search Eliminate unnecessary results Change location Use punctuation and symbols The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 15 The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 16 Search Tips Avoid common words such as I, do, for, a. Most search engines usually ignore these terms Don t worry about capitalization search isn t case sensitive Search by location, zip & area code Name only The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 17 The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 18 3
Search Tips Name with zip code Search Tips Change location The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 19 The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 20 Search web in other languages click search tools then select "Translated foreign pages" Punctuation and symbols Most punctuation is ignored Quotation marks: any query inside quotation marks will only return results with that exact phrase. Negative symbol, helps to exclude pages in your searching. The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 21 The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 22 Advanced Search Social Media The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 23 The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 24 4
ARS Question Facebook At my location, we search for patients on social media (example facebook, Linked in) 1. Never 2. Every once in a while 3. All of the time Never 33% 33% 33% Once in While All the Time Overview Contact patients and/or their contacts via the message feature Find contact info (phone number, email, etc.) Find work/school info Give you clues about why your patient is unresponsive (moved out of the country, studying abroad, started a new job) The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 25 The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 26 Facebook Facebook searching Messages go to the other folder if you aren t already connected Searching: Type name or email addresses in the search bar at the top of any Facebook page. Facebook lets you see all pages that match your results, even those in a foreign country The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 27 The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 28 Facebook searching Caution Social Media should be used with care, some suggestions Create a work account, avoid using personal Don t friend patients on Facebook Check with your organization for specific guidelines The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 29 The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 30 5
Our Team Page Other search sites The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 31 The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 32 Free Search Sites Free Search Sites Description Link Description Link Area Code Listing and Look up http://areacode.org/ http://www.zabasearch.com/ Country Calling Codes http://www.countrycallingcodes.com/ http://pipl.com/ Death Records Search http://www.dobsearch.com/death-records/ http://www.ip-adress.com/whois/ DoD active duty https://www.dmdc.osd.mil/appj/scra/scrahome.do www.peekyou.com Federal Bureau of Prison http://www.bop.gov/iloc2/locateinmate.jsp Search Engine www.google.com Inmate Locator http://www.inmatesplus.com/ Search Engine http://www.bing.com/ Inmate Locator www.vinelink.com Social Networks Sites www.facebook.com www.spokeo.com Social Networks Sites www.twitter.com www.whitepages.com Zip Code Look-Up http://www.zipinfo.com/search/zipcode.htm The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 33 The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 34 Resources Using Google to Locate Registry Members Active at Search (PDF) Using Facebook to Locate Registry Members Active at Search (PDF) Closing Statement Combination of all these tools can help you be successful in finding your patients! The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 35 The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 36 6
Casey Contact Info PHONE 612-617-8377 FAX 612-884-8287 Questions EMAIL cbeardsl@nmdp.org The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 37 The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 38 7