Tips to Prevent Form 2802, Lost to Follow-up Casey Beardslee, Supervisor Donor Contact Team Minneapolis, MN
Agenda 45 min. Introduction Tricks/hints for locating patient contact information Outreach options Search engines Social Media Questions The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 2
Why Me? The team I work on focuses on difficult to find donors CallBack Unit Escalation team of 13 people housed in MN We work on approximately 20% of domestic donor formal searches We use available clues to piece together the big picture The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 3
ARS Questions Automated Response System Interactive Presentation ARS question will be kept open until most of you responded If you select an option, you can change your mind and just press the correct number Your last response will be the one recorded. The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 4
ARS Question Where are you from? 1. Utah 2. Wisconsin 3. Another US State 4. Non-Us (International) Location Utah 25% 25% 25% 25% Wisconsin US State International The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 5
ARS Question In my down time in Salt Lake City, I plan to 1. Stay in my room and order room service 2. Everything and anything 3. I m not sure yet Room 33% 33% 33% Everything Not Sure The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 6
Form 2802 The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 7
Outreach Options The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 8
Types of Outreach Traditional Phone Calls Home Work Cell Letter Emails The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 9
Types of Outreach Other Outreach Phone calls (lots and lots) Text messages FedEx Letters Outreach to contacts Outreach to possible contacts Use and search with social media and free search engines The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 10
Text Messages 160 characters available Short messages, have been found to be most effective Example, Hello, is this Kay? Note: check with your legal regarding guidelines The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 11
Outreach Attempt outreach for several days Stagger outreach across evenings and weekends Be available on those off hours The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 12
Search Engines The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 13
ARS Question At my location, we search for patients on the internet (example Google) 33% 33% 33% 1. Never 2. Every once in a while 3. All of the time Never Once in While All the Time The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 14
Overview Uses an algorithm to determine what results to show you. Results are ordered based on relevancy, or what makes sense according to their algorithm. You can force Google to show you certain results, which will help you more effectively find what you re looking for. The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 15
Google should be your go-to site Refining your search Eliminate unnecessary results Change location Use punctuation and symbols The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 16
Avoid common words such as I, do, for, a. Most search engines usually ignore these terms Don t worry about capitalization search isn t case sensitive Search by location, zip & area code The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 17
Search Tips Name only The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 18
Search Tips Name with zip code The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 19
Search Tips Change location The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 20
Search web in other languages click search tools then select "Translated foreign pages" The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 21
Punctuation and symbols Most punctuation is ignored Quotation marks: any query inside quotation marks will only return results with that exact phrase. Negative symbol, helps to exclude pages in your searching. The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 22
Advanced Search The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 23
Social Media The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 24
ARS Question At my location, we search for patients on social media (example facebook, Linked in) 1. Never 2. Every once in a while 3. All of the time Never 33% 33% 33% Once in While All the Time The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 25
Facebook Overview Contact patients and/or their contacts via the message feature Find contact info (phone number, email, etc.) Find work/school info Give you clues about why your patient is unresponsive (moved out of the country, studying abroad, started a new job) The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 26
Facebook Messages go to the other folder if you aren t already connected Searching: Type name or email addresses in the search bar at the top of any Facebook page. Facebook lets you see all pages that match your results, even those in a foreign country The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 27
Facebook searching The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 28
Facebook searching The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 29
Caution Social Media should be used with care, some suggestions Create a work account, avoid using personal Don t friend patients on Facebook Check with your organization for specific guidelines The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 30
Our Team Page The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 31
Other search sites The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 32
Free Search Sites Description Area Code Listing and Look up Country Calling Codes Death Records Search DoD active duty Federal Bureau of Prison Inmate Locator Inmate Locator Person Search Person Search Link http://areacode.org/ http://www.countrycallingcodes.com/ http://www.dobsearch.com/death-records/ https://www.dmdc.osd.mil/appj/scra/scrahome.do http://www.bop.gov/iloc2/locateinmate.jsp http://www.inmatesplus.com/ www.vinelink.com www.spokeo.com www.whitepages.com The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 33
Free Search Sites Description Person Search Person Search Person Search Person Search Search Engine Search Engine Social Networks Sites Social Networks Sites Zip Code Look-Up Link http://www.zabasearch.com/ http://pipl.com/ http://www.ip-adress.com/whois/ www.peekyou.com www.google.com http://www.bing.com/ www.facebook.com www.twitter.com http://www.zipinfo.com/search/zipcode.htm The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 34
Resources Using Google to Locate Registry Members Active at Search (PDF) Using Facebook to Locate Registry Members Active at Search (PDF) The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 35
Closing Statement Combination of all these tools can help you be successful in finding your patients! The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 36
Casey Contact Info PHONE 612-617-8377 FAX 612-884-8287 EMAIL cbeardsl@nmdp.org The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 37
The NATIONAL MARROW DONOR PROGRAM operates the Be The Match Registry. 38