SATSA Presentation Parliamentary Portfolio Committee on Sport and Recreation 1 st November :30 Cape Town

Transcription

1 SATSA Presentation Parliamentary Portfolio Committee on Sport and Recreation 1 st November :30 Cape Town

2 South African Transplant Sports Association Home for Transplant Athletes

3 Introduction SATSA Chairman s Remarks SATSA Delegation 1. SATSA Chairman: Mr Stanley Henkeman 2 SATSA Executive Secretary: Mr Hermann Steyn Committee on Sport & Recreation 1. Chairperson of the Committee: Ms Beauty Nomvuzo Dlulane 2 Member of the Committee: Mr Mandlenkosi Sicelo

4 SATSA Management

5 Vision Our vision as a purpose driven sports organisation, is to be a leader in optimising the quality of life of organ transplant recipients, and through sports and other physical activities, promote organ donation and transplantation.

6 Who is SATSA? Established in 1994 as TGASA Restructured and renamed as SATSA in 2006 A non-profit, purpose driven Sports Organisation for transplant recipients A uniquely focussed organisation

7 .who is SATSA? National & International Recognition Affiliated Members of SASCOC Affiliated Member of the World Transplant Games Federation (WTGF) Represented on the WTGF Council

8 SATSA Objectives To demonstrate the improved quality of life following transplantation through participation in sports activities National & World Transplant Games To facilitate the participation of persons from previously disadvantaged communities, in the activities of SATSA;

9 SATSA Objectives. To show recipients gratitude towards and recognition of living donors and families of deceased donors; To promote awareness, educate and inform the general public with regard to the need for organ and tissue donation and transplantation and;

10 SATSA Objectives.. To facilitate co-operation between persons / organisations concerned with and involved in organ donation and transplantation eg. Organ Donor Foundation Patient Support Groups

11 What do we do? Organise regional recreational events Compete at the SA National Transplant Games Selected to represent the SA Team; Compete at the World Transplant Games;

12 Home to all sport codes Track & field Road Running Cycling Swimming Golf Tennis Badminton Squash Table Tennis Petanque Ten Pin Bowling

13 Results & Successes at WTG NO. GOLD SILVER BRONZE TOTAL ATHLETES MEDALS 1995 Manchester Sydney 23 5** Budapest Kobe Nancy * London (CA) 14 6** Bangkok Cold Coast (A) 40 16** Gotenborg Durban 75 42** Mar del Plata 46 41** Malaga, Spain (*= Influenced by SARS virus outbreak. **= Included a World Record) SA Athletes currently hold seventeen World Records

14 National Transplant Games 2016 Johannesburg

15 World Transplant Games 2017 Malaga, Spain

16 Who can be members? Full Members: Transplant recipients heart, lung, liver, kidney, pancreas & bone marrow Associate members: - Family members of - recipients - Donor families - Individual professionals - Corporate individuals - General public

17 Membership benefits Participate in all sports events Nationally and WTG Receive Newsletters & Journals Be part of promoting organ donation & transplantation

18 Membership Regional Representation Gauteng WC KZN NW/FS EC Namibia Limpopo Mphumalanga Northern Cape Full Members Total Members

19 Demographics Full Members Regional Gauteng WC EC KZN NW Mph NC Limp FS Generic Black Female White Female Generic Black Male White Male White Male Generic Black Male White Female Generic Black Female

20 Athletes at National Games Regional Representation National Games 2014 Age Groups National Games Limpopo Ecape NW/OFS Gaut KZN Wcape Namibia Mpumal

21 Athletes at World Games Regional Representation World Games 2015 Demographics World Games W Cape Gauteng KZN E Cape North WestFreestate Namibia 0 White Male White Female Generic Black Male Generic Black Female Age Groups World Games 2015 Organs Transplanted World Games Kidney Heart Liver Bone Marrow

22 GENERIC BLACK REPRESENTATION NATIONAL TEAM

23 MARKETING Website Interactive Promotion Success stories Corporate Identity Upgrading of promotional material in the increase of awareness of the federation, disciplines and its activities. Media and Publicity Production of Documentaries on SATSA History, Success Stories, etc. Improve relationship with the Media Start Archive of SATSA material Increase TV coverage for major activities & events

24 SASCOC Requirements Alignment to the geopolitical boundaries We have a total of 444 members in South Africa (as at 30 th March 2016): in the following regions: Gauteng: 182 Western Cape: 120 KZN: 64 Eastern Cape: 29 Northwest: 23 Limpopo: 7 Mphumalanga: 7 Northern Cape: 2 It is important to note that we are a multi-coded federation and we do not fall under specific districts. The districts are merely a reflection of where the athletes are from.

25 Transformation in SATSA Transformation, in its broadest context, must be tackled on several fronts and is being implemented accordingly: 1 Racial 6 National Priorities 2 Economic 5 Admin 3 Sport Performance 4 Governance

26 1. Racial and Gender Transformation Objectives To strengthen participation by all racial groups To increase female participation Challenges Unlike other Federations we cannot enroll members from the sportsgrounds of South Africa as our members are a select group of people who had solid organ transplants. It should be noted that there are high costs involved with transplants and they are only being done at private hospitals. Given the affordability of transplants, it limits the economic base of our membership and our transformation. Due to the transplant centres in our country being in Gauteng, KZN and Western Cape, most of the athletes are from these areas due to them having relocated to be near their doctors

27 2. Economic Transformation Objectives Capacity-building in our Regions Challenges Unemployment Structural changes to be made in order to achieve economic growth & improve standards of living.

28 3. Sport Performance Objectives Establish grassroots programmes to increase participation in sport. Training camps for our National Team Increase the coaching culture at all levels Challenges Increased engagement with government at National & Provincial levels

29 4. Governance Objectives Become the model of good governance amongst sporting codes in the country Establish a strong regulatory environment to manage relations among the members Build a culture of ethical behaviour that permeates all the way to the grassroots structures Challenges Lack of respect for basic governance principles

30 5. Administrative Build the most professional team to administer the sport Rebuild the culture of voluntarism Build culture of service and commitment among all members throughout the country Challenges Lack of financial resources

31 6. National Priorities Objectives Compliance with the National Sports Plan Promotion of Organ Donation & Transplantation. Challenges Resources

32 Difficulties experienced with Transformation Rising cost of living is making it increasingly difficult for volunteers to support the work of the Federation, who cannot pick up all of the expenses. Delayed Lottery applications are hampering progress and continuity of programmes. SATSA need more funding to improve family support amongst our disadvantaged athletes.

33 Utilization of Department of Sport Funds Administration Capacity Building The definition of capacity building is the process aimed at improving the expertise and skills of individuals and the organisation. The funds we receive are aimed at contributing to the growth and development of sport. The funds are utilised for specific projects that promotes development initiatives within the federation with the aim of increasing participation.

34 Talent Identification and Development The Department creates an environment for us to function optimally, such that our athletes and administrators can represent South Africa at international level. The goal is to maximize access, development and excellence at all levels of participation in sport, to ensure successful participation at international level and also to improve the quality of life for transplanted athletes. This programme helps economically disadvantaged athletes to participate at our National Games in order to qualify for selection for the World Games by providing sponsorship for transport, accommodation and food. Mass Participations programme in place where the sporting codes are introduced to members Recipients are selected on merit in collaboration with local clubs. Eligible athletes are chosen according to qualification criteria.

35 Highlights From inception the Association pursued the following aims & objectives: A renewed focus to grow its membership and strengthen the Association s presence and active involvement in all the provinces; To actively pursue the Transformation Objectives as set out in various documents and speeches by the Ministers of Sport and Recreation over the preceding years. It was a particular objective to ensure that the Association s Management and representative Teams would reflect the demographics of those who had received life-saving organ transplants;

36 Challenges Due to its very unique make-up and position in sport, SATSA does not have the possibility to draw large funding from the traditional sponsors who rightfully look for large returns as far as exposure on national and international television, radio and the printed media. Lack of funding is curbing events, timeframes and planning. It is difficult for disadvantaged athletes to go to National and International Championships without financial support. Unlike other Federations we cannot enroll members from the sportsgrounds of South Africa as our members are a select group of people who had life-saving solid organ transplants. The affordability of transplants limits the economic base of our membership and our transformation. Organ Donation & Transplantation

37 Organ donation & transplantations There are more than 4,300 patients listed awaiting an organ transplant. Another in need of soft tissue like skin, bone & tendons Out of R 50 mil population registered donors Medical students at UCT 8% are organ donors. Only 500 average transplants are done yearly The issue that exists is a Supply & Demand Problem. In SA there are only 1.7 donors per million population compared to Spain who have 35 donors per million Declining number of deceased donors & transplants

38 Organ donation & transplantations Over people are awaiting kidney transplants in Gauteng, this according to Spokeperson for the Gauteng Health department, Steve Mabona. Patients from seven of the nine provinces have their kidney transplants at Charlotte Maxeke Hospital in Johannesburg and Steve Biko Academic hospital in Pretoria. Only about 50 transplants have been conducted over the past three years due to the unavailability of matching donors. Mabona says the situation is quite severe. It's dire. About patients are waiting for the transplant. The other challenge which compounds the list is the non-matching donors so we will then call on members of the community to come to our facilities and be donors.

39 Organ donation & transplantations Over people are awaiting kidney transplants in Gauteng, this according to Spokeperson for the Gauteng Health department, Steve Mabona. Patients from seven of the nine provinces have their kidney transplants at Charlotte Maxeke Hospital in Johannesburg and Steve Biko Academic hospital in Pretoria. Only about 50 transplants have been conducted over the past three years due to the unavailability of matching donors. Mabona says the situation is quite severe. It's dire. About patients are waiting for the transplant. The other challenge which compounds the list is the non-matching donors so we will then call on members of the community to come to our facilities and be donors.

40 Total Number of Transplants in South Africa

41 Other Statistics STATISTICS 2 Largest State Hospitals Waiting List Transplants Kidney Liver Heart Lung Charlotte Maxeke, Johannesburg Grootte Schuur, Cape Town Kidney/ Pancreas Kidney/Liv er Pancreas Total Regional Statistics - Solid OrganTransplants Cape Town Johannesburg Pretoria Durban Bloemfontein 5 5 Total Solid Organs Consent Rates - Cape Town Black Coloured White Families Asked Consent Families Asked Consent Families Asked Consent Private Sector 2 0 0% % % State Sector % % 0 0

42 Medalists in 2015

43 TRANSPLANT CENTRES IN SOUTH AFRICA Adults over 18 Paediatrics under 18 Hospital State or Private Heart Kidney Lung Liver Kidney/Pancreas A P A P A P A P A P BLOEMFONTEIN Universitas State Yes Netcate Universitas Private Yes CAPE TOWN Netcare Christiaan Barnard Memorial Private Yes Yes Yes Netcare UCT Academic Private Yes Yes Groote Schuur State Yes Yes Yes Red Cross Memorial Choldrens State Yes Yes Yes Tygerberg State Yes DURBAN Inkosi Albert Luthuli State Yes Ethekwini Hospital Private Yes Yes Entabeni Life Healthcare Private Yes Netcare St Augustines Private Yes Yes JOHANNESBURG Charlotte Maxeke JHB Academic State Yes Yes Yes Netcare Garden City Clinic Private Yes Yes Netcare Milpark Hospital Private Yes Yes Yes Yes/with heart Yes Wits Donald Gordon Private Yes Yes Yes Yes Yes PRETORIA George Mukhari Hospital State Yes Netcare Jacaranda Private Yes Pretoria Academic State Yes

44 Way forward To continue our previous successes at the World Transplant Games in Argentina in 2015 and before; To work towards a lasting legacy that will show in the following: Greater awareness and knowledge of Transplant Sports; A better understanding of how transplanted persons can live a normal life and take their place in society again; Measurable increases in the numbers of people that register as Organ & Tissue Donors; Increased Donor/Transplant rates across the whole of South Africa and even further into Africa; Improved Knowledge of the state of Organ Donation & Transplantation in other countries in Africa and as a result increased cooperation between the various Transplant Centres in Africa.

45 Recommendations Need for political support from local to national level. Corporate SA (especially medical companies) to be encouraged to support Transplant sport. Government to assist in awareness of organ donation in sports community.

46 Thank you for the opportunity!