UP AND GO! GAYLE WIENS, PT, ATS. Early Access to Mobility for All Young Children

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1 UP AND GO! GAYLE WIENS, PT, ATS Early Access to Mobility for All Young Children

2 ARIZONA Technology Access Program

3

4 ARIZONA Technology Access Prag ram AzTAP Phoenix phone fax 300 W. Clarendon Ave. Phoenix AZ Website: aztap.org Online catalog and check out IHD Flagstaff 912 Riordan Rd. Flagstaff AZ phone fax

5 WHY WORK ON MOBILITY SO EARLY? Children with mild spina bifida, who simply crawled late, had cognitive-spatial deficits that persisted in adulthood

6 - Child Bra1n - Development - /.., -GOOD NUTRITION LEADS TO MORE STABLE MOODS, INCREASES IN ABILITY TO PAY ATTENTION. ANO IMPROVED MEMORY. at 18 moo1hs. a toddler's spoken voca~ul~ry starts to exlp()(le they add one n8vii word every two waking hours. LOVING AND CONSISTENT CARE-GIVING LEADS TO A BRAIN THAT HAS AN ABILITY TO LE"ARN TO DELAY GRATlFICATION, PROBLEM SOLVE. AND HAVE EMPATHY FOR OTHERS. totl~lers neve more than 100 trllllon cell connocllons o (c.>ll<>d synapses) a, age two, O the most the)l'ii e'ter heee in lholr life 1 by two years, most todellers h8v8 8 1O0--rd ~ocabu lary I and sre puu,1111 1ogeIher simple,.,,,,word sentenoes C./ Typical toddlers have more than 100 trillion connections/synapses at age 2, the most they will EVER have in their life. We don t have much time before the unused connections start being pruned out. Use it or lose it! This is the reality in brain development. happyfamily OIHiUOr; IUJ1'111"00'P!I

7 GROSS MOTOR FUNCTION CLASSIFICATION SCALE 1 is the mildest disability, 5 is the most challenged. Who needs early mobility? ANY of these children that experience a delay in independent mobility.

8 In my experiences with early mobility, a burst of development happens when the child is able to be independently mobile, able to experiment with moving and turning towards their target. This matches the Campos finding that locomotion causes a burst of development. Uchiyama et al. 2008) The Role of Locomotion in Psychological Development, Front Psychol. 2013; 4:440 Anderson, Campos, Witherington, et. al. Link to full text in your reference list. LOCOMOTION IS NOT MERELY A MATURATIONAL ANTECEDENT TO THIS BURST IN DEVELOPMENT, BUT INSTEAD PLAYS A CAUSAL ROLE IN THEIR GENESIS JOSEPH CAMPOS

9 Late independent mobility means lost opportunities to build specific skills (and corresponding brain development). ONE EXAMPLE: DIRECTIONALITY Learning where things are in relationship to your body.

10 MAKING IT POSSIBLE!

11 MAKING IT POSSIBLE! FOR CHILDREN WITH CHALLENGES WITH THEIR LEGS Leg problem? No Problem. Borrow a Zip Zac from the Up and Go Project. If it works, build your own. Instructions online ables.com/id/diy- Bumbo- Wheelchair-for- Kids/

12 NEED SOMETHING BIGGER THAN THE ZIPZAC? CYCLONE FROM WALMART.COM ABOUT $40.

13 ARMS A PROBLEM TOO? Borrow a KidWalk Gait trainer from an Up and Go site or from AzTAP

14 Changing a characteristic posture for a highly meaningful activity

15 HEAD CONTROL A CHALLENGE TOO? Add the Head Pod to a gait trainer or to a seating device to use with the switch driven scooter. Your text here

16 KIDWALK TRIAL WITH HEADPOD WITH SENSITIVE CHILD

17 USING THE KIDWALK FOR STANDING AND PARTICIPATING. Better than a stander, while there may be some sitting, there will also be active standing, opportunities for participation, less locking of the lower extremities, and learning to use legs for movement.

18 CHILD USING GRILLO Mike Khulmann

19 RIFTON GAIT TRAINER

20 Do you know a child that does not use their hands and arms for support? Or a child unable to use one hand to hold on to a traditional walker?

21 A couple years later.

22 CHILD WITH MILD ATHETOSIS TRYING WALKER WITH SUPPORTS.

23 PROGRESSING TOWARDS WALKING

24 The picture can't be displayed. When a child has difficulty holding on; Apert syndrome with syndactly.

25 FIRST TRY WITH WALKER (FOREARM SUPPORTS ARE TOO WIDE AND TOO HIGH)

26 REGULAR WALKER WITH EXTRA SUPPORTS

27 THE DAY THE WALKER ARRIVES

28 STRENGTH OR MOVEMENT AN ISSUE? Borrow a scooter from Up and Go or AzTAP. A workshop for parents to build a scooter is planned, likely in February. Details will be through AzTAP

29 CHILD WITH GREAT COGNITION WHO NEEDS INDEPENDENT MOBILITY

30 EARLY USE OF POWER CHAIRS

31 //////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////.~==================================================4'////////////////////////// problem! Many children have more cognitive ability than it first appears, even if you aren t seeing it. You need a highly motivating, highly meaningful activity. A switch driven scooter can be the ticket! Watch this child think through and solve a ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////// ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////// ////////////////////////// ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////// ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////// ////////////////////////// ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////// ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////// ////////////////////////// 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///////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////. /////////////////// ///////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////////. /////////////////// COGNITIVE CHALLENGES?

32 My daughter Mayzie is 2.5yrs old. Unlike her twin brother, she is completely nonambulatory. She longs to interact with others, as she much prefers social interaction over any toy. The scooter allows Mayzie to move; she LOVES to move. To see her be able to interact with her siblings is an amazing thing. With the switch activation, she has the ability to move in various directions... and she DOES it- she moves!! She moves herself!! It is truly an incredible sight to see. She can explore the environment around her at her own pace, taking time to process when she needs to. This scooter has made a HUGE impact in not only Mayzie's life, but our whole family's. We feel blessed to have had the opportunity to trial it, and are looking forward to others being able to share in the joy this scooter brings!

33 SPINNING IS OK!

34

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