The Lililwan Collaboration: Inquiry into Fetal Alcohol Spectrum Disorders (FASD)

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1 The Lililwan Collaboration: Inquiry into Fetal Alcohol Spectrum Disorders (FASD) Submission to the House of Representatives Standing Committee on Social Policy and Legal Affairs, 23rd March, 2012.

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4 <N;;3AO 92 C.-$2#)6.($6 &* "#$ %&'&'()*,-./$01 H.'')G.-)1&.*K2 3-$'&;&*)-7 25G;&22&.* 6)1$6 _ 1# <$0$;G$- Z\++P 1#&2 6.05;$*1 $f3)*62.* &12.4$-)'' -$0.;;$*6)1&.*2 )*6 #&F#'&F#12 ) 23$0&C& *&17 1#)1 0.5'6 G$ #)-*$22$6 *.( 1. )64)*0$ 1#$ 3-$4$*1&.*P 6&)F*.2&2 )*6 ;)*)F$;$*1.C 89:< &* 9521-)'&)A "#$ 3-$2$*1 25G;&22&.* 52$2 1#$ $f3$-1&2$.c "#$ %&'&'()*,-./$01 H.'')G.-)1&.* 1..CC$- ) ;5'1&C)0$1$6 )33-.)0# F-$22 1#$ 89:< )F$*6) &* 9521-)'&)A J$ -$0.F*&2$ 1#)1 3-.F-$22&*F 1#$ )F$*6) *)1&.*)''7 &2 ) 0.;3'$f 5*6$-1)I&*F )*6 (&'' &*4.'4$ 2&F*&C&0)*1 0.;;&1;$*1.C 1&;$P $*$-F7 )*6 -$2.5-0$2A 91 1#$ 2);$ 1&;$P.5- $f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f1 21$32 "#$ %&'&'()*,-./$01 H.'')G.-)1&.* (.5'6 ($'0.;$ 1#$ C 0.''$)F5$2 )*6.1#$-.-F)*&2)1&.*2 (#. #)4$ )* &*1$-$21 &* 89:<P ;)*7.C (#.; #)4$ #&F#'&F#1$6 1#$ ;.6$' &* 1#$&- 25G;&22&.*2 1. 1#$ B*Y5&-7 H.;;&11$$A "#$ %&'&'()*,-./$01 H.'')G.-)1&.* -$;)&*2 0.;;&11$ &*F 1#$ B*Y5&-7 )*6 )22&21&*F 1#$ H.;;.*($)'1# O.4$-*;$*1 1. )66-$22 1#$ 0#)''$*F$2.C 89:<A!"# %&'&'()* +,-.#/0 1-'')2-,)0&-* 4

5 >5!A69N1!>65 +-H&0&-* </-I# -L 0"&H HG2F&HH&-* 92 C.-$2#)6.($6 &* "#$ %&'&'()*,-./$01 H.'')G.-)1&.*K2 3-$'&;&*)-7 25G;&22&.* 6)1$6 _ 1# <$0$;G$- Z\++ =2$$ 933$*6&f 9>P 1#&2 6.05;$*1 $f3)*62.* 1#$.4$-)'' -$0.;;$*6)1&.*2 )*6 #&F#'&F#12 ) 23$0&C& *&17 1#)1 0.5'6 G$ #)-*$22$6 *.( 1. )64)*0$ 1#$ 3-$4$*1&.* )*6 ;)*)F$;$*1.C 89:< &* 9521-)'&)A "#$ 3-$'&;&*)-7 25G;&22&.* =C.5*6 )1T #113Tii(((A)3#AF.4A)5i,)-'&);$*1)-7 ]52&*$22iH.;;&11$$2iN.52$.C L$3-$2$*1)1&4$2 H.;;&11$$2k5-'li23 ')ic)26i25g2a#1; >3-.4&6$6 )*.4$-4&$(.C 1#$ I$7 0#)''$*F$2.C 89:< &* 9521-)'&) )*6 ;)6$ ) 25&1$.C.4$-)'' -$0.;;$*6)1&.*2 )F)&*21 1#$ B*Y5&-7 "$-;2.C L$C$-$*0$A "#$ 25G;&22&.*2.C.1#$- I$7 21)I$#.'6$-2 )*6 0.''$)F5$2 h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evelop culturally specific prevention, intervention and management strategies for Aboriginal and Torres Strait Islander peoples that are supported and managed by local communities. These strategies should be based on current good practice examples such as the Marulu Strategy in Western Australia. 2,$-#)32 ;.21 &;3.-1)*1'7P 1#&2 25G;&22&.* )&; '&*$ )* )33-.)0# C.- 0)3&1)'&2&*F.* 1#$ 2500$22 6-&4$-2.C 1#$ ;.6$'P )*6 1#$ *&17 1#$ ;.6$' 3-$2$*12 C.- my5&0i (&*2K (&1#&* ) G-.)6$- )*6 '.*F$-R 1$-; C-);$(.-I.C *)1&.*)' )01&.*.* +,-I-H&0&-* "#$ 0.;;5*&17R&*&1&)1$6 ;.6$'.C 6&)F*.2&2 )*6 ;)*)F$;$*1.C 89:< 1-&)''$6 &* 1#$ B*6&F$*.52 0.;;5*&1&$2.C 1#$ b&;g$-'$7k2 &2 ) 5*&Y5$ ;&f.c 0.;;5*&17 6-&4$ )*6 $*F)F$;$*1 (&1# )0)6$;&0 )*6 #$)'1# $f3$-1&2$a "#$ %&'&'()*,-./$01 H.'')G.-)1&.* #)2 2500$22C5''7 G-.5F#1 05--$*1 ;$6&0)' I*.('$6F$ 1. )22$22 )*6 G$F&* 1. )66-$22 1#$ 0#)''$*F$2.C 89:< &* 1#$ "#$ ;.6$' ()2 G5&'1 C-.; C&-21 3-&*0&3'$2 (&1# 1#$ &*&1&)1&4$P P 0.*2$*1 )*6 $*F)F$;$*1.C 1#$ 0.;;5*&17 )*6 &12 '$)6$-2A The project is a genuine partnership one where research is done with the community and not just about the community 3 Z 8.5*6)1&.* C.- 9'0.#.' L$2$)-0# n S650)1&.*A :5G;&22&.* 1. 1#$ N.52$.C L$3-$2$*1)1&4$2 :1)*6&*F H.;;&11$$.* :.0&)',.'&07 )*6 %$F)' 9CC)&-2T B*Y5&-7 &*1. 8$1)' 9'0.#.' :3$01-5; <&2.-6$-2P Z\++ [ D&0I O..6)P 9G.-&F&*)' )*6 ".--$2 :1-)&1 B2')*6$- :.0&)' X521&0$ H.;;&22&.*$-A B*T %)1&;$- XP S''&.11 SP 8&1?3)1-&0I XP 8$--$&-) DP H)-1$- DP V20)- XP b$cc.-6 DA D)-5'5P "#$ %&'&'()*,-./$01A 8$1)' 9'0.#.' :3$01-5; <&2.-6$-2 =89:<>,-$4)'$*0$ :1567 &* 1#$ 9 H.;;5*&17 H.*25'1)1&.*A "#$ O$.-F$ B*21&151$ C.- O'.G)' N$)'1#P 93-&' Z\+ZA B:]M W^_R\Ra`aRe[[W\RZ!"# %&'&'()* +,-.#/0 1-'')2-,)0&-* 5

6 "#$ )G&'&17 )*6 -$351)1&.*.C 1#&2 F &6$ )0)6$;&0 $f3$-1&2$ =SSP X%P X8> &2 $4&6$*0$6 G7 1#$ B*Y5&-7 H.;;&11$$K2 -$Y5$ #$; C.- G)0IF-.5*6 ;)1$-&)'2A 9521-)'&)* 35G'&0)1&.*2 -$')1&*F 1. 89:< ($-$ 3-.4&6$6 (&1# 1#$ 3-$'&;&*)-7 25G;&22&.* =2$$ 933$*6&f ]>A B* )66&1&.*P 1#$ 1$); &*0'56$2 9G.-&F&*)' 3$.3'$ =XVP DH> )G'$ &6$ 05'15-)' 0.*1$f1 C.- 1#$ (.-IA ]$7.*6 -$2$)-0#P 1#$ 3-./$01 1$); &2 )G'$ &6$ -$)' (.-'6 $f3$-&$*0$.c ) ;.6$' C.- $*F)F&*F )'' 4.&0$2 &* 1#$ 2.'51&.* h )0-.22 ;)*7 21)I$#.'6$-2 )*6 6&20&3'&*$2P *)1&.*)''7 )*6 &*1$-*)1&.*)''7 h 1#)1 &2P ;.21 &;3.-1)*1'7 0.;;5*&17R.(*$6 )*6 6-&4$*A "#$ 0'&*&0)' 1$); 0.*2&212.C ) 3)$6&)1-&0&)*P.0053)1&.*)' 1#$-)3&21P 0'&*&0)' 3270#.'.F&21P 3#72&.1#$-)3&21P 23$$0# 1#$-)3&21 )*6 '.0)' 9G.-&F&*)',$.3'$ =H.;;5*&17 M)4&F)1.-2> (&1# '.0)' ')*F5)F$ 2I&''2 )*6 1-)&*$6 &* -$2$)-0# 1$0#*&Y5$2 =933$*6&f H>A A partnering of the Fitzroy Valley community with researchers at The George Institute and The University of Sydney is setting an example to the rest of Australia of how to best approach Indigenous Affairs. A process guided by a relationship underpinned by meaningful, respectful engagement and collaboration. 4 "#$-$ &2 ) 5*&Y5$ *& )3&1)'&2$.* 1#&2 $f&21&*f ;.6$'P 51&'&2&*F 1#$ )0)6$;&0 )*6 9G.-&F&*)' $f3$-1&2$.c "#$ %&'&'()*,-./$01 H.'')G.-)1&.*A "#$ 1-)*2C$-)G'$ '$22.*2 )*6 I$7 2500$22 6-&4$-2.C "#$ %&'&'()*,-./$01 *$$6 1. G$ 0)315-$6 &* ) -.G521 )*6 0.;3-$#$*2&4$ $4)'5)1&.*A "#$ $4)'5)1&.* (.5'6 3-.4&6$ 1#$ 21)-1&*F 3.&*1 C.- ;.G&'&2&*F &;3'$;$*1)1&.* )*6 $4)'5)1&.*.C 1#$ ;.6$'.C 0)-$ &*.1#$- 0.;;5*&1&$2 &* 9521-)'&)A "#$ 6$2&F*.C )* $4)'5)1&.* 2#.5'6 G5&'6 &* *&1&$2 C.- C$$6G)0I 1#)1 (.5'6 3-.4&6$ $22$*1&)' $4&6$*0$ )*6 &*2&F# '&07 ;)I$-2 )*6 1#$ 0.;;5*&1&$2 1#$;2$'4$2 (#&'$ ) G-.)6$- )*6 '.*F$- 1$-; M)1&.*)' 89:<,')* &2 6$2&F*$6 )*6 &;3'$;$*1$6A :5FF$21$6 *$f1 21$32 )-$.51'&*$6 ')1$- &* 1#&2 6.05;$*1A The Marulu Project for overcoming FASD and early life trauma in the Fitzroy Valley will have far-reaching implications which need to be taken up by all agencies and services. 5 6@8A3%% +>1!NA8 D)/JR,-G*K!"# /-*K&0&-* 8$1)' 9'0.#.' :3$01-5; <&2.-6$-2 =89:<> )-$ 1-)F&0 G51 3-$4$*1)G'$.510.;$2.C $f3.25-$ 1. )'0.#.' 65-&*F 3-$F*)*07A 9'0.#.' $f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a A N.($4$-P ) ')-F$- F-.53.C 0#&'6-$* &* 1#$ 89:< 23$01-5; #)4$ *$5-.R6$4$'.3;$*1)' 3-.G'$;2 &* 1#$ )G2$*0$.C C)0&)'.- 3#72&0)' C$)15-$2 )*6 1#$ 6&)F*.2&2 &* 1#$2$ 0#&'6-$* &2 ;.-$ 6&CC&05'1A ` D&0I O..6)P 9G.-&F&*)' )*6 ".--$2 :1-)&1 B2')*6$- :.0&)' X521&0$ H.;;&22&.*$-A B*T Z\+\ :.0&)' X521&0$ L$ )'&)* N5;)* L&F#12 H.;;&22&.* Z\++A B::M +_[^Ra`Z_ =,-&*1> )*6 B::M +_[^Ra`[a =V*R'&*$> e J#&1$P D,)1#()72 1. ) F..6 '&C$ ($'' '&4$6A H.;;5*&17.(*$6 L$0.4$-7,')* C.-.4$-0.;&*F 25&0&6)' 6$23)&- &* 1#$ N$-05'$&) H.*25'1&*FP :$31$;G$- Z\++ 3-$3)-$6 C.- D)-*&*()-*1&I5-) 8&1?-.7 J.;$*K2 L$2.5-0$ )*6 %$F)' H$*1-$P D)--) J.--) J.--) 9G.-&F&*)' H.-3.-)1&.*P M&*6&'&*F)--& H5'15-)' N$)'1# )*6 b&;g$-'$7 9G.-&F&*)' %)( )*6 H5'15-)' H$*1-$A a S''&.11 SXP,)7*$ XP D.--&2 9P N))* SP ].($- HA 8$1)' )'0.#.' 27*6-.;$T ) 3-.23$01&4$ *)1&.*)' 25-4$&'')*0$ 21567A 9-0# <&2 H#&'6A Z\\_ :$3oW[=W>T^[ZR^A S35G Z\\^ 95F +^A!"# %&'&'()* +,-.#/0 1-'')2-,)0&-* 6

7 <&E# -L 0"# I,-2'#F :$-4&0$ 6$4$'.3;$*1 )*6 3-$4$*1&.* 6$3$*62.* 5*6$-21)*6&*F 1#$ 2&?$.C 1#$ 3-.G'$;.C 89:<A 89:< 3-$4)'$*0$ &* 9521-)'&) #)2 *.1 G$$* )005-)1$'7 6$1$-;&*$6A,) &$2 #)4$ G$$* #);3$-$6 G7 5*6$-R -$0.F*&1&.* )*6 5*6$-R-$3.-1&*FA 9 #&F# Y5)'&17 3-$4)'$*0$ &2 5*6$-()7 &* 1#$ R ) #&F# -&2I 0.;;5*&17 ="#$ %&'&'()*,-./$01>A "#$ -$25'12.C 1#& (&'' G$ )33'&0)G'$ 1..1#$- 0.;;5*&1&$2 &* 9521-)'&) (&1# 2&;&')- 3)11$-*2.C )'0.#.' 52$A!"# %&'&'()* +,-.#/0 91 ) J.;$*p2 ]52# D$$1&*F &* Z\\_ 1#$ 0.;;5*&1&$2 &6$*1&C&$6 1#$ *$$6 1. )66-$22 8$1)' 9'0.#.' :3$01-5; <&2.-6$-2 =89:<> h 1#$ '$F)07.C )'0.#.' 52$ &* 3-$F*)*07 R )2 )* &225$.C 3)-1&05')- 0.*0$-*^A B* V01.G$- Z\\_ ) 89:< '$)6$-2#&3 1$); ()2 C.-;$6 )*6 &* M.4$;G$- Z\\_ 1#$7 $;G-)0$6 ) p0&-0'$.c C-&$*62p R 3)-1*$-2 &* F.4$-*;$*1P G52&*$22 )*6 0.;;5*&17.-F)*&2)1&.*2 R )*6 6$4$'.3$6 ) 21-)1$F7 1. )66-$22 89:<A "#$ 21-)1$F7P 0)''$6 )*'$+$ &*0'56$2 6&)F*.2&2 )*6 3-$4$*1&.*.C 89:<P 0.;;5*&17 $650)1&.*P )* C.- 3)-$*12 )*6 0)-$-2.C )CC$01$6 0#&'6-$* _ A D)-5'5 &2 ) (.-6 &* 1#$ ]5*5G) ')*F5)F$ ;$)*&*F c3-$0&.52p (.-1# *5-15-&*FdA B* Z\\W B*6&F$*.52 '$)6$-2 &* =b&;g$-'$7p J9> &*&1&)1$6 ) -$2$)-0# 3)-1*$-2#&3 G$1($$* M&*6&'&*F)--& H5'15-)' N$)'1# :$-4&0$2 )*6 D)-*&*()-*1&I5-) J.;$*K2 L$2.5-0$ H$*1-$ =G.1# )1 8&1?-.7 H-.22&*F>P "#$ O$.-F$ B*21&151$ C.- O'.G)' N$)'1# )*6 "#$ Q*&4$-2&17.C :76*$7 D$6&0)' :0#..' 1. 0.*6501 1#$ C& )'&)* C 89:< 3-$4)'$*0$P (#&0# 1#$7 0)''$6,-& /!+!+0*" 1'(2&3% 4 5 %&'&'()* &2 ) b-&.' =9G.-&F&*)' S*F'&2#> (.-6 ;$)*&*F c)'' 1#$ '&11'$.*$2dA :1)F$ +.C 1#$ 3-./$01 =Z\\WR++>P C5*6$6 G7 ) 3#&')*1#-.3&21P &*0'56$6 6$4$'.3;$*1 )*6 52$.C ) ;$6&0)' #& #$0I'&21 1..G1)&* &*C.-;)1&.* )G.51 )*1$*)1)' $f3.25-$2p $)-'7 '&C$ 1-)5;)P #$)'1# )*6 6$4$'.3;$*1 C-.; 3)-$*12 )*6 0)-$-2.C )'' 0#&'6-$* G.-* &* Z\\Z.- Z\\[A :1)F$ Z &*4.'4$2 ;5'1&R6&20&3'&*)-7 )22$22;$*1.C 1#$ #$)'1# )*6 6$4$'.3;$*1.C 1#$2$ 0#&'6-$* )*6 &2 C5*6$6 G7 1#$ H.;;.*($)'1# =<VN9P 8)NH:B9 )*6 :)4$ 1#$ H#&'6-$*>A 1'( 6("( #)2 G$$* 3-.4&6$6 G7 92#5-21 =C.-;$-'7 ]')I$ <)(2.* :.'&0&1.-2>P Dn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q) F$*5&*$ 3)-1*$-2#&3 R.*$ (#$-$ -$2$)-0# &2 6.*$ (&1# 1#$ 0.;;5*&17 )*6 *.1 /521 )G.51 1#$ 0.;;5*&17Pq 2)7&*F &1 &2 q2$11&*f )* $f);3'$ 1. 1#$ -$21.C 9521-)'&)q G$&*F ) 3-.0$22 qf5&6$6 G7 ) -$')1&.*2#&3 5*6$-3&**$6 G7 ;$)*&*FC5'P -$23$01C5' $*F)F$;$*1 )*6 0.'')G.-)1&.*Aq ^ S''&.11 SP %)1&;$- XP 8&1?3)1-&0I XP V20)- XP H)-1$- DA "#$-$K2 #.3$ &* 1#$ 4)''$7A X.5-*)'.C,)$6&)1-&02 )*6 H#&'6 N$)'1# `_ =Z\+Z> +W\h+WZ 8 b&-g7 "A ]'5*1&*F 1#$ '$F)07.C )'0.#.' )G52$ &* J$21$-* 9521-)'&)A /*"3&%A Z\+Z X)* Z+o[^W=W_+Z>TZ\^R_A W 8&1?3)1-&0I XP S''&.11 SP %)1&;$- XP H)-1$- DP V20)- XP 8$--&$-) DP H)-;&0#)$'RV'2.* NP %50)2 ]P <.*$7 LP :)'1$- HP,$)6.* SP N)(I$2 OP N)*6 DA "#$ %&'&'()*,-./$01T ' C.- ) 3.35')1&.* G)2$6P )01&4$ 0)2$ )20$-1)&*;$* C 1#$ 3-$4)'$*0$.C 8$1)' 9'0.#.' :3$01-5; <&2.-6$-2 =89:<> &* -$;.1$ 9521-)'&)* 9G.-&F&*)' 0.;;5*&1&$2A B*,-$22A 7)8 9:&"A D)-0# Z\+ZA!"# %&'&'()* +,-.#/0 1-'')2-,)0&-* 7

8 6S#,)'' A#/-FF#*K)0&-*H 0-0"# &*TG&,U "#$ C.''.(&*F -$0.;;$*6)1&.*2 h #&F#'&F#1$6 &*.5-3-$'&;&*)-7 25G;&22&.* =2$$ 933$*6&f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f$2P 0.;;5*&17R&*&1&)1$6 -$21-&01&.*2 =$AFA '$F&2')1$6 m6-7k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f3'.-$ 1#$ -)1&.*)'$ )*6 0.*1$*1.C ) 20-$$*&*F 1..'! S;G$6 89:< $650)1&.* )*6 3-$4$*1&.* ;$22)F$2 &* )'' 5*6$-F-)65)1$ )*6 3.21F-)65)1$ #$)'1# -$')1$6 05--&05')! S650)1$ #$)'1# 3-.C$22&.*)'2 &* 6&)F*.2&2.C 89:< )*6 )22$22;$*1.C #$)'1# )*6 6$4$'.3;$*1)' *$$62.C )CC$01$6 0#&'6-$*! B;3-.4$ 1#$ 0)3)0&17.C $f&21&*f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f + #&F#'&F#12 -$0.;;$*6)1&.*2 C-.; 1#$ 3-$'&;&*)-7 25G;&22&.* 1#)1 -$')1$ ;.-$ 6&-$01'7 1. 1#$ ;.6$' 6$4$'.3$6 &* "#$ %&'&'()*,-./$01A "#$ -$;)&*6$-.C.5- C.''.(R53 25G;&22&.* 0.*2&6$-2 1#$2$ &* ;.-$ 6$1)&'A Box 1 Priority recommendations from preliminary submission B*Y5&-7 "$-;2.C L$C$-$*0$ ="VL>,-&.-&17 L$0.;;$*6)1&.*2 h V33.-15*&17 C.-,-.F-$22 *.( +,#S#*0&-* <0,)0#R&#H! 9#S#'-I )*6 &;3'$;$*1 ) *)1&.*)' 35G'&0 #$)'1# 0);3)&F* 1. -)&2$ )()-$*$22.C 1#$ #)-;2.C )'0.#.' 52$ &* 3-$F*)*07P 0.;;$*0&*F )1 20#..' )F$A D)&*1)&* )'0.#.' -$21-&01&.*2 &* C.-0&*F -$;.1$ 0.;;5*&1&$2P 1#$2$ G$&*F &;3.-1)*1 1. '&;&1 )00$22 1. )'0.#.'A B* )66&1&.*P 1)-F$1$6 &*C.-;)1&.* C.- #&F#R -&2I F #.5'6 G$ 3-.4&6$6A,-.;.1$ 1#$ 52$.C C&'; &* )64.0)07A =9'2. 2$$ G$'.( 5*6$- $*F)F$;$* *&1&$2> >*0#,S#*0&-* 5##KH! 8S)'G)0# 1#$ C$)2&G&'&17.C 1#$ &*1$-6&20&3'&*)-7 ;.6$'.C 89:< 6&)F*.2&2 )*6 ;)*)F$;$*1 52$6 &* "#$ %&'&'()*,-./$01 =&* 1#$ )*6 )22$22 &12 3.1$*1&)' )33'&0)1&.* &*.1#$- -$;.1$ B*6&F$*.52 )*6 *.*RB*6&F$*.52 0.;;5*&1&$2 ;)*)R#F#*0!?G*K )*6 $4)'5)1$ 1#$ H.'')G.-)1&4$ H.;;5*&17 H&-0'$.C H)-$ ;.6$' 6$4$'.3$6 &* 1#$ C C C);&'&$2 )*6 0#&'6-$* (&1# 89:< )*6 0.;;5*&17 $650)1&.* )* ! 8*R)R# )F$*0&$2 &*0'56&*F #$)'1#P $650)1&.*P /521&0$ )*6 3.'&0&*FP 6&2)G&'&17 2$-4&0$2P 0#&'6 3-.1$01&.*P $;3'.7;$*1 )*6 1-)&*&*F )*6 #.52&*F 1. -$0.F*&2$ 1#$ &225$.C 89:<P )*6 0.*2&6$- )'1$-*)1&4$ $650)1&.*P 1-)&*&*F )*6 $;3'.7;$*1 3)1#()72 =250# )2 1#$-)3$51&0 $0.*.;&02 G$&*F 6$4$'.3$6 &* 1#$ C.- 3$.3'$ (&1# 89:< ) #$ '&C$23)*A!"# %&'&'()* +,-.#/0 1-'')2-,)0&-* 9

10 3 N5>PN8 6++6A!N5>!OQ 6? %613% >;+31! !>653% 31!>65 Local people are saying that the valley has already lost one generation to alcohol abuse. Without decisive action now, it stands to lose a second generation. 10 "#$ ;)/.- C.052.C 1#&2 25G;&22&.* 52$2 1#$ $f3$-1&2$.c "#$ %&'&'()*,-./$01 1$); 1..CC$- ) ;5'1&C)0$1$6 )33-.)0# F-$22 1#$ 89:< )F$*6)A J&1#.1#$-2 (#. #)4$ ;)6$ 25G;&22&.*2P ($ -$0.F*&2$ 1#)1 3-.F-$22&*F 1#$ )F$*6) *)1&.*)''7 &2 ) 0.;3'$f 5*6$-1)I&*FP &*4.'4&*F 2&F*&C&0)*1 0.;;&1;$*1.C 1&;$P $*$-F7 )*6 -$2.5-0$2A 91 1#$ 2);$ 1&;$P.5- $f3$-&$*0$ 25FF$212 1#)1 &1 &2 3.22&G'$ 1. G5&'6 ;.;$*15; C.- 1#$ ')-F$- 20)'$ $*6$)4.5- C-.; )FF-$F)1&.*.C 2;)''$- 20)'$ '.0)' 2500$22P G5&'6&*F &* my5&0i (&*2K )'.*F 1#$ ()7A :&;5'1)*$.52'7P F.4$-*;$*12 ; F-$22 '$F&2')1&.* 1. $*25-$ 1#)1 ;$)25-$2 1#)1 #)4$ G$$* 3-.4$* 1. 6$0-$)2$ )'0.#.' 52$ =$FT 1)f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my5&0i (&*2K>P ;$6&5;R1$-; )*6 '.*F$- 1$-; 2500$22 &* 6$4$'.3&*F ) *)1&.*)' )33-.)0# 1. 89:<A 901&4&17 &2 6$20-&G$6 )1 ) #&F# '$4$' 1. &''521-)1$ 1#$ C 0.;3.*$*1 3)-12.C G5&'6&*F 1#$ *)1&.*)' )33-.)0#P G)2$6.*.5- $f3$-&$*0$p )*6 )0I*.('$6F&*F 1#$ -$0.;;$*6)1&.*2 ;)6$ G7.5-0.''$)F5$2A ^ J#&1$P D,)1#()72 1. ) F..6 '&C$ ($'' '&4$6A H.;;5*&17.(*$6 L$0.4$-7,')* C.-.4$-0.;&*F 25&0&6)' 6$23)&- &* 1#$ N$-05'$&) H.*25'1&*FP :$31$;G$- Z\++ 3-$3)-$6 C.- D)-*&*()-*1&I5-) 8&1?-.7 J.;$*K2 L$2.5-0$ )*6 %$F)' H$*1-$P D)--) J.--) J.--) 9G.-&F&*)' H.-3.-)1&. M&*6&'&*F)--& H5'15-)' N$)'1# )*6 b&;g$-'$7 9G.-&F&*)' %)( )*6 H5'15-)' H$*1-$!"# %&'&'()* +,-.#/0 1-'')2-,)0&-* 10

11 INQUIRY INTO FETAL ALCOHOL SPECTRUM DISORDERS (FASD) 8&F5-$ +!"# %&'&'()* +,-.#/0 1-'')2-,)0&-* 11

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f);3'$p 65-&*F 1#$ 0.5-2$.C "#$ %&'&'()*,-./$ ;$*1)-&$2 $*1&1'$6 md)-5'5k ++ )*6 m"-&21)*k ($-$ 6$4$'.3$6 1. -)&2$ )()-$*$22.C 89:<A m"-&21)*k (&'' G$ ')5*0#$6 G7 1#$ O.4$-*.- O$*$-)'.C 9521-)'&) &* :76*$7 &* 93-&' Z\+Z )*6 2#.(* )1 1#$ S'$4$*1# :$22&.*.C 1#$ Q*&1$6 M)1&.*2,$-;)*$*1 8.-5;.* B*6&F$*.52 B225$2 )1 1#$ Q*&1$6 M)1&.*2 N$)6Y5)-1$- &* M$( r.-ip ^R+_ D)7 Z\+ZA Tristan will show the challenges faced by a child and his family who are living with FASD. 12 5)0&-*)' /--,K&*)0&-* 9 0.-$ 1#$;$ )F-$$6 );.*F 0.''$)F5$2 &* 1#&2 C&$'6P )*6 -$C'$01$6 &* ;.21 25G;&22&.*2 &2 1#$ )G2.'51$ *$$6 C.- ) *)1&.*)' F &4$ 1#$ 6$4$'.3;$*1.C 1#$ )33-.)0# 1. 89:<A M$0$22)-&'7 1#&2 F-.53 (&'' *$$6 1. -$3-$2$*1 ) -)*F$.C I$7 &*1$-$212P G51 )'2. ) -)*F$.C $f3$-1&2$a 9* $f&21&*f *)1&.*)' F-.53P 1#$ 9521-)'&)* 89:< H.'')G.-)1&.* =933$*6&f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f1P m*)1&.*)' )01&.*K 0$-1)&*'7 -$Y5&-$2 C.-;)' G57R&*.C H.;;.*($)'1#P :1)1$ )*6 "$--&1.-7 O.4$-*;$*12A 92 ($'' )2 C.-;)' )--)*F$;$*12 )0-.22 F.4$-*;$*12P $*F)F$;$*1 ) C.'&.2P )0-.22 #$)'1# )*6 0.;;5*&17 2$-4&0$ 3-.C$22&.*)'2 )*6 ) ;;5*&1&$2 &2 0-&1&0)' $22C5''7 ;.G&'&2&*F ) *)1&.*)' )33-.)0#A H.;3-$#$*2&4$ 21)I$#.'6$- $*F)F$;$*1 &2 ) C.5*6)1&.*.C 1#$ 6$4$'.3;$*1.C ) *)1&.*)' )33-.)0#A <$4$'.3;$*1 )*6 $f$051&.*.c 1#$ 21)I$#.'6$- $*F)F$;$*1 21-)1$F7 (&'' *$$6 1&;$ )*6 -$2.5-0$2 1. G$ 2500$22C5'A "#$ ;*%!("*+ <=>!?('@ A($"3!+ (.5'6.4$-2$$ 6$4$'.3;$*1 )*6 $f$051&.*.c 1#$ 21)I$#.'6$- $*F)F$;$*1 3')*A 1)I&0)'&H&*R -* '-/)' HG//#HHQ /)I0G,&*R 0"# '#HH-*H -L!"# %&'&'()* +,-.#/0 V4$- 6$0)6$2 9G.-&F&*)' '$)6$-2 &* 1#$ *.1&0$6 )* &*0-$)2&*F *5;G$-.C 0#&'6-$* (&1# 23$0&)' *$$62 )*6 -$0.F*&2$6 1#)1 1#$7 #)6 G$$* $f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

13 0('%- "$'%$'!"CA "#$ %&'&'()*,-./$01 (#&0# C.-;2 3)-1.C 1#&2 21-)1$F7 ()2 &*&1&)1$6 1. 6$1$-;&*$ 89:< 3-$4)'$*0$ &* 1#$ "#$ )33-.)0# 52$6 &* "#$ %&'&'()*,-./$01 C.- 6&)F*.2&2.C 89:< )*6 6$4$'.3;$*1.C )* &*6&4&65)' ;)*)F$;$*1 3')* C.- )CC$01$6 0#&'6-$*P 3-.4&6$2 ) ;.6$' 1#)1 &2 (&6$'7 -$0.F*&2$6 )2 G$21 3-)01&0$A "#$ '$22.*2 3-.4&6$6 G7 1#$,-./$01 *$$6 1. G$ 0)315-$6P )*6 1#$ F$*$-)' 3-&*0&3'$2 6&21&''$6 1. 5*6$-3&* 0.;;5*&17R'$6 )33-.)0#$2 $'2$(#$-$A B* 3)-1*$-2#&3 (&1# 1#$ %&'&'()* H.'')G.-)1&.*P )* $4)'5)1&.* C.052$6.* 1-)*2C$--)G'$ '$22.*2 2#.5'6 G$ C5*6$6P )*6.4$-2$$* G7 1#$ ;*%!("*+ <=>!?('@ A($"3!+A Recommendation #4: That government and other investments take community direction, backed up by research provided by the Marulu Project team, on what family support and other services need urgent funding in order to prevent early life trauma and FASD. 13 +")H# \ [ 9#S#'-IF#*0 -L ) 5)0&-*)'?3<9 +')* "#$ 2$0.*6 3#)2$.C 1#$ 6$4$'.3;$*1.C ) *)1&.*)' )33-.)0# (.5'6 #)4$ 1(. G-.)6 )-$)2.C C.052T 1#$ 6$4$'.3;$*1.C 1#$ M)1&.*)',')*P )*6 F-.(1#.C C5-1#$- $f);3'$2.c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arriers to diagnosis are accentuated in rural, remote and Indigenous communities where access to health services is limited. Lack of identification of FASD means we are unable to quantify the problem and thus lack evidence to advocate for much needed health professional training and diagnostic services. 14 D.G&'&2&*F ) 6)1) -$3.2&1.-7.C )33-.3-&)1$ Y5)'&17 &2 ) '.*F$-R1$-; 5*6$-1)I&*FA B* 1#$ 2# ;$6&5; 1$-;P &1 &2 (&6$'7 )F-$$6 1#)1 3.35')1&.* G)2$6 3-$4)'$*0$ 2156&$2 2#.5'6 G$ C5*6$6 &* ) -)*F$.C 3.35')1&.*2P B*6&F$*.52 )*6 *.*RB*6&F$*.52P )*6 ) -)*F$.C 2$11&*F2P 5-G)*P -5-)' )*6 -$;.1$A "#$ ;*%!("*+ <=>!?('@ A($"3!+ (.5'6.4$-2$$ 1#$ 6$4$'.3;$*1 )*6 $f$051&.*.c ;)/.- 3-$4)'$*0$ 2156&$2A "#$ -$25'12 (.5'6 G$ 52$6 1. &*C.-; 1#$ 6$'&4$-7.C 1#$ *)1&.*)' )33-.)0# 1. 3-$4$*1&.*P &*1$-4$*1&.* )*6 ;)*)F$;$*1.C 89:<A The FASD prevalence study will form a key component of the evidence base to advocate for funding and resources to implement remedial projects to address and prevent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b&;g$-'$7 9G.-&F&*)' %)( )*6 H5'15-)' H$*1-$A +` "$'$1#.* B*21&151$ C.- H#&'6 N$)'1# L$2$)-0# :5G;&22&.* 1. N.52$ :1)*6&*F H.;;&11$$.* :.0&)',.'&07 )*6 %$F)' 9CC)&-2 B*Y5&-7 &*1. 8.$1)' 9'0.#.' :3$01-5; <&2.-6$- +e D&0I O..6)P 9G.-&F&*)' )*6 ".--$2 :1-)&1 B2')*6$- :.0&)' X521&0$ H.;;&22&.*$-A B*T Z\+\ :.0&)' X521&0$ L$ )'&)* N5;)* L&F#12 H.;;&22&.* Z\++A B::M +_[^Ra`Z_ =,-&*1> )*6 B::M +_[^Ra`[a =V*R'&*$>!"# %&'&'()* +,-.#/0 1-'')2-,)0&-* 13

14 1)I&0)'&H&*R )*K R,-(&*R '-/)' HG//#HH "#$ 3.1$*1&)' 4)'5$.C 1#$ 8&1?-.7 D.6$'.C 6&)F*.2&2 )*6 ;)*)F$;$*1.C 89:< &2 ($''R-$0.F*&2$6A <&21&'')1&.*.C 1#$ 1-)*2C$--)G'$ '$22.*2 C-.; 1#$ ;.6$' =,#)2$ +> 3-.4&6$ ) 21)-1&*F 3.&*1 C.- 1#$ G-.)6$- -.''.51.C 1#$ 3-&*0&3'$2.C 1#$ ;.6$' h )2 )-1&05')1$6 &* ) -)*F$.C 0.;;$*1)-7 +a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f$051&.* We note the work of the Marulu Project in the Fitzroy Valley (with which the Committee is familiar) and commend the Project to the Inquiry as a model for community devised and driven solutions to community challenges. We suggest projects such as this should be supported as part of any strategy to address FASD rather than government taking a wholly generalised approach to prevention and intervention, given FASD exists in many disparate communities. 17 +")H# ] [ >FI'#F#*0)0&-* -L ) 5)0&-*)' 3II,-)/",#)2$ [P 1#$ ;.21 6&21)'.C 1#$ 3#)2$2 &* 1#$ 6$4$'.3;$*1.C 1#$ *)1&.*)' )33-.)0#P &2 '$22 23$0&C&$6A B12 C$)15-$2 6$3$*6 $*1&-$'7.* 1#$ 6$4$'.3;$*12.C 1#$ $)-'&$- 3#)2$2P )*6.* 1#$ 0.*4$-F&*F '&*$2.C $4&6$*0$ )005;5')1$6A b$7 3-&*0&3'$2 1#)1 (&'' 6-&4$ $CC$01&4$ &;3'$;$*1)1&.* 0)* G$ &6$*1&C&$6o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a b&-g7 "A ]'5*1&*F 1#$ '$F)07.C )'0.#.' 52$ &* J$21$-* 9521-)'&)A J.-'6 L$3.-1A %)*0$1 [^WT Z\^RZ\_A +^ ]')I$ <)(2.* :5G;&22&.* 1. 1#$ N.52$.C L$3-$2$*1)1&4$2 :1)*6&*F H.;;&11$$.* :.0&)',.'&07 )*6 %$F)' 9CC)&-2T 3$.3'$ (&1# 8.$1)' 9'0.#.' :3$01-5; <&2.-6$- &* 1#$ 6&2)G&'&17 -$F&;$ )*6 0-&;&*)' /521&0$ 2721$; #113Tii(((A#-$.0AF.4A)5i2.0&)' /521&0$i2/ -$3.-1i2/-$3.-1+\i0#)3[A#1;'A!"# %&'&'()* +,-.#/0 1-'')2-,)0&-* 14

15 3++859>18< 3II#*K&^ 3 [ +,#'&F&*),U <G2F&HH&-* _ 0" 9#/#F2#, \`ZZ Z_ +,#'&F&*),U <G2F&HH&-* 0-!"# =-GH# <0)*K&*R 1-FF&00## -* <-/&)' +-'&/U )*K %#R)' 3LL)&,H 1%2$&*( &%'" 3-'/, 4,+"5", 67-+'*$# 8&9"*0-*9 :3468; -* 2#")'L -L!"# %&'&'()* 1-'')2-,)0&-* 1'&:*'&= 6@T,-.C S'&?)G$1# S''&.11P D2 X5*$ V20)-P <- X);$2 8&1?3)1-&0IP 9i,-.C X)*$ %)1&;$-.* G$#)'C.C D2 D)5-$$* H)-1$- )*6 "#$ %&'&'()*,-./$01 "$); >*0,-KG/0&-* +G,I-H# "#$ $.C 1#&2 25G;&22&.* &2 1.T! V51'&*$ 1#$ 20.3$.C ) 6$1)&'$6 6.05;$*1 ($ (&'' 25G;&1 1. 1#$ H.;;&11$$ G7 8$G-5)-7 +^1# P Z\+ZP! : #$ 3-$2$*1)1&.* ($ ;)6$ 1. 1#$ B*Y5&-7 H.;;&11$$.* "#5-26)7P Z` M.4$;G$- Z\++P )2 -$0.-6$6 &* N)*2)-6P! :533'7 -$'$4)* )'&)* '&1$-)15-$ )G.51 89:<P )2 -$Y5$21$6 G7 1#$ H.;;&11$$ =)11)0#$6>A!"# /-*K&0&-* 8$1)' 9'0.#.' :3$01-5; <&2.-6$-2 =89:<> )-$ 1-)F&0 G51 3-$4$*1)G'$.510.;$2.C $f3.25-$ 1. )'0.#.' 65-&*F 3-$F*)*07A 9'0.#.' $f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f3.2$6 1. )'0.#.' &*R51$-.A B* 0.'')G.-)1&.* (&1# 1#$&- 3)-1*$-2 ="#$ O$.-F$ B*21&151$ C.- O'.G)' N$)'1#P )*6 "#$ Q*&4$-2&17.C :76*$7> 1#$ 0.;;5*&1&$2.C 1#$ #)4$ '$6 1#$ ()7 &* 6$4$'.3&*F 0.;;5*&17RG)2$6 21-)1$F&$ $4$*1 )*6 6&)F*.2$ 89:< )* C);&'&$2 0)-&*F C.- )CC$01$6 0#&'6-$*A "#$2$ 21-)1$F&$2 6$;.*21-)1$ 1#$ 0-&1&0)' -.'$.C 0.;;5*&17 &* 6$4$'.3&*F )*6.(*&*F 1#$ )33-.)0# 1. )66-$22&*F 1#$ 0#)''$*F$2.C 89:<A +_ #113Tii(((A)3#AF.4A)5i,)-'&);$*1)-7 ]52&*$22iH.;;&11$$2iN.52$.C L$3-$2$*1)1&4$2 H.;;&11$$2k5-'li23')iC)26i25G2A#1;!"# %&'&'()* +,-.#/0 1-'')2-,)0&-* 15

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24

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